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[The European Rare Kidney Disease Reference Network].

• Authors : Wlodkowski T; Zentrum für Kinder und Jugendmedizin, Sektion Pädiatrische Nephrologie, Universitätsklinikum Heidelberg, Im Neuenheimer Feld 430, 69120, Heidelberg, Deutschland. .; Haeberle S

Subjects: Rare Diseases*/Rare Diseases*/Rare Diseases*/therapy ; Rare Diseases*/Rare Diseases*/Rare Diseases*/diagnosis ; Rare Diseases*/Rare Diseases*/Rare Diseases*/epidemiology

• Source: Innere Medizin (Heidelberg, Germany) [Inn Med (Heidelb)] 2024 Dec; Vol. 65 (12), pp. 1283-1292. Date of Electronic Publication: 2024 Nov 13.Publisher: Springer Medizin Country of Publication: Germany NLM ID: 9918384885306676 Publication Model: Print-Electronic Cited Medium: Internet ISSN:

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Novartis AG Meet the Management - Final.

• Source: Fair Disclosure Wire. 2024.

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An international comparative analysis of public reimbursement of orphan drugs in Canadian provinces compared to European countries.

• Authors : Ward, Leanne Marie; Chambers, Alexandra; Mechichi, Emine

Subjects: ORPHAN drugs; CANADIAN provinces; DRUG accessibilityEUROPE; ONTARIO

• Source: Orphanet Journal of Rare Diseases; 3/4/2022, Vol. 17 Issue 1, p1-14, 14p

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ERA Registry Annual Report 2019: summary and age comparisons.

• Authors : Boenink, Rianne; Astley, Megan E; Huijben, Jilske A

Subjects: CORPORATION reports; RENAL replacement therapy; CHRONIC kidney failureEUROPE

• Source: Clinical Kidney Journal; Mar2022, Vol. 15 Issue 3, p452-472, 21p

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Nephropathic Cystinosis Epidemiology Forecast Report 2022: Focus on United States, Germany, Spain, Italy, France, United Kingdom, and Japan, 2019-2032 - ResearchAndMarkets.com.

• Source: Business Wire. 2022.

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Influenza and pneumococcus vaccination rates in pediatric dialysis patients in Europe: recommendations vs reality A European Pediatric Dialysis Working Group and European Society for Pediatric Nephrology Dialysis Working Group study.

• Authors : ATİKEL, Yeşim Özdemir¹ ; BAKKALOĞLU, Sevcan A.¹; PAGLIALONGA, Fabio²

Subjects: *INFLUENZA; *HEMODIALYSIS patients; *INFLUENZA vaccinesEUROPE

• Source: Turkish Journal of Medical Sciences. 2021, Vol. 51 Issue 6, p2881-2886. 6p.

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Social and medical needs of rare metabolic patients: results from a MetabERN survey.

• Authors : Sestini, Sylvia; Paneghetti, Laura; Lampe, Christina

• Source: Orphanet Journal of Rare Diseases. August 3, 2021, Vol. 16 Issue 1.

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Patient safety issues associated with the use of compounded medicines as alternatives to approved pharmaceutical products in Europe and how best practice can improve outcomes.

• Authors : Isles, Mike¹

Subjects: *MEDICATION error prevention; *OCCUPATIONAL roles; *DRUG overdoseEUROPE

• Source: International Journal of Risk & Safety in Medicine. 2020, Vol. 31 Issue 3, p133-144. 12p.

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Prevalence of Tuberculosis Disease Among Adult US-Bound Refugees with Chronic Kidney Disease.

• Authors : Bardenheier, Barbara H.; Pavkov, Meda E.; Winston, Carla A.

Subjects: TUBERCULOSIS risk factors; CHRONIC kidney failure complications; TUBERCULOSIS epidemiologyAFRICA; ASIA; EUROPE

• Source: Journal of Immigrant & Minority Health; Dec2019, Vol. 21 Issue 6, p1275-1281, 7p

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Eloxx Pharmaceuticals announces Cystic Fibrosis Foundation (CF Foundation) to provide funding and support for ELX-02 US Phase 2 clinical trial.

• Source: Chemical Business NewsBase (UK), September 23, 2019, 1pp

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