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Prepare for the worst...Hope for the best.

• Authors : Yaster, Myron¹ (AUTHOR) ; Maxwell, Lynne G.² (AUTHOR)

Subjects: *SPINAL muscular atrophy; *CONTINUOUS positive airway pressure

• Source: Pediatric Anesthesia. Apr2023, Vol. 33 Issue 4, p274-275. 2p.

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Capital Institute of Pediatrics Researchers Add New Data to Research in Spinal Muscular Atrophy (Association among biomarkers, phenotypes, and motor milestones in Chinese patients with 5q spinal muscular atrophy types 1-3).

• Source: Health & Medicine Week. 2024, pages. 953

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Capital Institute of Pediatrics Researchers Advance Knowledge in Spinal Muscular Atrophy (Variants located in intron 6 of SMN1 lead to misdiagnosis in genetic detection and screening for SMA)

• Source: Obesity, Fitness & Wellness Week. April 6, 2024, 1238

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Nusinersen Treatment for Spinal Muscular Atrophy: Retrospective Multicenter Study of Pediatric and Adult Patients in Kuwait.

• Authors : AlTawari, Asma; Zakaria, Mohammad; Kamel, Walaa

Subjects: SPINAL muscular atrophy; NEUROMUSCULAR diseases; MUSCLE weaknessKUWAITCHILDREN'S Hospital of Philadelphia

• Source: Neurology International; Jun2024, Vol. 16 Issue 3, p631-642, 12p

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Ecuador: Children's Hospital offers hope to children with Spinal Muscular Atrophy thanks to free delivery of Nusinersen medication.

• Source: Contify Life Science News. 2024.

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Needleless inhaled anesthesia with sevoflurane: Advantages of a simplified approach for children with spinal muscular atrophy undergoing intrathecal administration of nusinersen.

• Authors : Salerno, Annalisa¹ (AUTHOR); Picconi, Enzo¹ (AUTHOR) ; Genovese, Orazio¹ (AUTHOR)

Subjects: *SPINAL muscular atrophy; *GENERAL anesthesia; *PEDIATRIC intensive care

• Source: Pediatric Anesthesia. Apr2023, Vol. 33 Issue 4, p282-290. 9p.

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Management of Critically Ill Patients With Spinal Muscular Atrophy Admitted With Acute Respiratory Failure.

• Authors : Al-Subu, Awni M.; Adams, Carolyn K.; Dykstra, Scarlett A.

Subjects: TREATMENT of spinal muscular atrophy; INTENSIVE care units; LENGTH of stay in hospitals

• Source: Respiratory Care; Feb2023, Vol. 68 Issue 2, p247-254, 8p

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Capital Institute of Pediatrics Researchers Add New Data to Research in Spinal Muscular Atrophy (Association among biomarkers, phenotypes, and motor milestones in Chinese patients with 5q spinal muscular atrophy types 1-3)

• Source: Health & Medicine Week. September 20, 2024, 953

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University College London (UCL) Great Ormond Street Institute of Child Health Reports Findings in Gene Therapy (Risk-benefit profile of onasemnogene abeparvovec in older and heavier children with spinal muscular atrophy type 1)

• Source: Pediatrics Week. August 24, 2024, p602.

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Researchers evaluate the benefit of dual therapy for children at risk for spinal muscular atrophy

• Source: Pediatrics Week. July 13, 2024, p107.

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