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Authors :
Horie Y; Department of Gastroenterology, Saiseikai Gotsu General Hospital, Shimane, Japan.; Yasuoka Y
Subjects: Porphyrias, Hepatic*/Porphyrias, Hepatic*/Porphyrias, Hepatic*/complications ; Porphyrias, Hepatic*/Porphyrias, Hepatic*/Porphyrias, Hepatic*/epidemiology ; Porphyria, Acute Intermittent*/Porphyria, Acute Intermittent*/Porphyria, Acute Intermittent*/complications Porphyria, Acute Hepatic
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Source:
Orphanet journal of rare diseases [Orphanet J Rare Dis] 2023 Dec 08; Vol. 18 (1), pp. 384. Date of Electronic Publication: 2023 Dec 08.Publisher: BioMed Central Country of Publication: England NLM ID: 101266602 Publication Model: Electronic Cited Medium: Internet ISSN: 1750-1172
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Authors :
Wang B; Division of Gastroenterology, Department of Medicine, University of California San Francisco, San Francisco, CA, 94143, USA. .; Ventura P
Subjects: Porphyria, Acute Intermittent* ; Porphyrias, Hepatic*; Cost of Illness Porphyria, Acute Hepatic
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Source:
Orphanet journal of rare diseases [Orphanet J Rare Dis] 2022 Aug 26; Vol. 17 (1), pp. 327. Date of Electronic Publication: 2022 Aug 26.Publisher: BioMed Central Country of Publication: England NLM ID: 101266602 Publication Model: Electronic Cited Medium: Internet ISSN: 1750-1172
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Authors :
Connolly MP; Global Market Access Solutions Sarl, St-Prex, Switzerland. .; Unit of Pharmacoepidemiology and Pharmacoeconomics, Department of Pharmacy, University of Groningen, 9713 AV, Groningen, The Netherlands. .
Subjects: Porphyrias, Hepatic* ; Quality of Life*; Belgium
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Source:
Orphanet journal of rare diseases [Orphanet J Rare Dis] 2021 Aug 04; Vol. 16 (1), pp. 346. Date of Electronic Publication: 2021 Aug 04.Publisher: BioMed Central Country of Publication: England NLM ID: 101266602 Publication Model: Electronic Cited Medium: Internet ISSN: 1750-1172
Record details
Subjects: Caregivers* ; Porphyrias, Hepatic*; Humans
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Source:
Orphanet journal of rare diseases [Orphanet J Rare Dis] 2021 Apr 26; Vol. 16 (1), pp. 187. Date of Electronic Publication: 2021 Apr 26.Publisher: BioMed Central Country of Publication: England NLM ID: 101266602 Publication Model: Electronic Cited Medium: Internet ISSN: 1750-1172
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Authors :
Baravelli CM; Norwegian Porphyria Centre (NAPOS), Department of Medical Biochemistry and Pharmacology, Haukeland University Hospital, P.O.Box 1400, N-5021, Bergen, Norway. .; Department of Global Public Health and Primary Care, University of Bergen, Bergen, Norway. .
Subjects: Disabled Persons* ; Porphyrias, Hepatic*; Cohort Studies
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Source:
Orphanet journal of rare diseases [Orphanet J Rare Dis] 2020 Feb 21; Vol. 15 (1), pp. 56. Date of Electronic Publication: 2020 Feb 21.Publisher: BioMed Central Country of Publication: England NLM ID: 101266602 Publication Model: Electronic Cited Medium: Internet ISSN: 1750-1172
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Authors :
Marcacci M; Department of Surgical and Medical Sciences for Children and Adults, Internal Medicine Unit, University of Modena and Reggio Emilia, Via del Pozzo 71, 41124, Modena, Italy.; Ricci A
Subjects: Porphyria, Acute Intermittent*/Porphyria, Acute Intermittent*/Porphyria, Acute Intermittent*/diagnosis ; Porphyria, Acute Intermittent*/Porphyria, Acute Intermittent*/Porphyria, Acute Intermittent*/therapy ; Porphyrias*/Porphyrias*/Porphyrias*/complications Porphyria, Acute Hepatic
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Source:
Orphanet journal of rare diseases [Orphanet J Rare Dis] 2022 Apr 07; Vol. 17 (1), pp. 160. Date of Electronic Publication: 2022 Apr 07.Publisher: BioMed Central Country of Publication: England NLM ID: 101266602 Publication Model: Electronic Cited Medium: Internet ISSN: 1750-1172
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