The Impact of Caregiver Stigma on Real-Life Social Experience of Taiwanese Adolescents with Autism Spectrum Disorder

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  • Author(s): Lim, Valerie Hwee Taur; Chen, Yu-Wei Ryan (ORCID Chen, Yu-Wei Ryan (ORCID 0000-0001-5965-1279); Tseng, Mei-Hui (ORCID Tseng, Mei-Hui (ORCID 0000-0001-8354-7586); Bundy, Anita; Cordier, Reinie (ORCID Cordier, Reinie (ORCID 0000-0002-9906-5300)
  • Language:
    English
  • Source:
    Autism: The International Journal of Research and Practice. Oct 2021 25(7):1859-1871.
  • Publication Date:
    2021
  • Document Type:
    Journal Articles
    Reports - Research
  • Additional Information
    • Availability:
      SAGE Publications. 2455 Teller Road, Thousand Oaks, CA 91320. Tel: 800-818-7243; Tel: 805-499-9774; Fax: 800-583-2665; e-mail: [email protected]; Web site: http://sagepub.com
    • Peer Reviewed:
      Y
    • Source:
      13
    • Education Level:
      Elementary Education
      High Schools
      Secondary Education
    • Subject Terms:
      Caregivers; Caregiver Attitudes; Mothers; Rejection (Psychology); Attitudes toward Disabilities; Autism; Pervasive Developmental Disorders; Adolescents; Preadolescents; Elementary School Students; High School Students; Severity (of Disability); Handheld Devices; Telecommunications; Interaction; Family Relationship; Peer Relationship; Student School Relationship; Anxiety; Cultural Context; Foreign Countries
    • Subject Terms:
      Taiwan
    • Accession Number:
      10.1177/13623613211004329
    • ISSN:
      1362-3613
    • Abstract:
      Caregivers of adolescents with autism spectrum disorder commonly experience stigma. However, how stigma influences social interactions of adolescents with autism spectrum disorder is unclear. We aimed to explore the impact of caregiver stigma on real-life social experiences of Taiwanese adolescents with autism spectrum disorder. In the context of everyday activities, 76 adolescents with autism spectrum disorder who were not intellectually disabled (69 males, aged 10-16 years) carried a mobile device that prompted them 7 times, randomly, each day for 7 days to record with whom they were interacting, what they perceived, and how they felt about the interactions. Caregivers completed the Affiliate Stigma Scale to measure caregiver stigma. Multilevel analyses revealed that participants whose caregivers perceived high levels of stigma were more likely than those whose caregivers experienced less stigma to interact with family members and less likely to be interested in interacting with people at school. However, those participants also experienced more anxiety while interacting with family members. The findings shed light on ways that caregiver stigma impacted the social experiences of adolescents with autism spectrum disorder and suggest that, in promoting social participation for adolescents with autism spectrum disorder, researchers and service providers must support caregivers to manage stigma.
    • Abstract:
      As Provided
    • Publication Date:
      2021
    • Accession Number:
      EJ1307472