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Third Åland islands conference on von Willebrand disease, 26-28 September 2012: meeting report.
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- Author(s): Berntorp, E.; Fuchs, B.; Makris, M.; Montgomery, R.; Flood, V.; O'Donnell, J. S.; Federici, A. B.; Lillicrap, D.; James, P.; Budde, U.; Morfini, M.; Petrini, P.; Austin, S.; Kannicht, C.; Jiménez-Yuste, V.; Lee, C.
- Source:
Haemophilia. Mar2013 Supplement 3, Vol. 19, p1-18. 18p. 2 Black and White Photographs, 3 Diagrams, 3 Charts, 6 Graphs.
- Additional Information
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- Abstract:
The first meeting of international specialists in the field of von Willebrand disease ( VWD) was held in the Åland islands in 1998 where Erik von Willebrand had first observed a bleeding disorder in some members of a family from Föglö and a summary of the meeting was published in 1999. The second meeting was held in 2010 and a report of the meeting was published in 2012. Topics covered included progress in understanding of VWD over the last 50 years; multimers; classification of VWD; pharmacokinetics and laboratory assays; genetics; treating the paediatric patient; prophylaxis; geriatrics; gene therapy and treatment guidelines. This third meeting held over 3 days covered the structure and function of von Willebrand factor ( VWF); type 1 VWD, the most common form of the disease; a lifespan of pharmacokinetics in VWD; detecting inhibitors in VWD patients; and special challenges in understanding and treating the female VWD patient. [ABSTRACT FROM AUTHOR]
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