The Support Needs of Patients Requesting Medical Aid in Dying and Their Relatives: A Qualitative Study Using Semi-Structured Interviews and Written Narratives.

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  • Additional Information
    • Source:
      Publisher: Frontiers Media S.A Country of Publication: Switzerland NLM ID: 101304551 Publication Model: eCollection Cited Medium: Internet ISSN: 1661-8564 (Electronic) Linking ISSN: 16618556 NLM ISO Abbreviation: Int J Public Health Subsets: MEDLINE
    • Publication Information:
      Publication: 2021- : Lausanne, Switzerland : Frontiers Media S.A.
      Original Publication: Basel : Birkhäuser
    • Subject Terms:
      Qualitative Research* ; Family*/psychology ; Interviews as Topic*; Humans ; Female ; Male ; Middle Aged ; Belgium ; Adult ; Aged ; Suicide, Assisted/psychology ; Social Support ; Palliative Care/psychology ; Aged, 80 and over ; Narration
    • Abstract:
      Objectives: To explore the support needs that patients and relatives experience throughout their medical aid in dying (MAID) trajectories.
      Methods: A qualitative study in Belgium in 2022 using 1) semi-structured interviews with and personal written narratives of patients requesting MAID and 2) semi-structured interviews with relatives of patients requesting MAID. We performed a qualitative content analysis.
      Results: We included in our analysis the lived experiences of 15 patients and 21 of their relatives. We identified eight types of support needs: support for 1) maximizing daily functioning (only reported by patients), 2) making sense of the unbearable suffering (only reported by relatives), 3) managing meaningful activities, 4) navigating existential questions, 5) psycho-emotional regulation, 6) facilitating social interaction, 7) understanding the process toward MAID, 8) and handling organizational and practical matters.
      Conclusion: Patients and relatives might experience multidimensional support needs throughout their MAID trajectories. Our findings suggest that they experience these trajectories more as social/existential pathways than as medical ones. A palliative care approach may be an effective way to fulfill the support needs of patients and relatives throughout their MAID trajectories.
      Competing Interests: The authors declare that they do not have any conflicts of interest.
      (Copyright © 2024 Vissers, Gilissen, Cohen, Deliens, Mortier, Chambaere and Dierickx.)
    • References:
      J Med Ethics. 2017 Aug;43(8):489-494. (PMID: 28062650)
      Palliat Support Care. 2016 Dec;14(6):686-712. (PMID: 26732508)
      J Palliat Med. 2020 Nov;23(11):1468-1477. (PMID: 32302505)
      BMC Med Ethics. 2019 May 14;20(1):34. (PMID: 31088444)
      Psychooncology. 2013 Mar;22(3):555-63. (PMID: 22290823)
      Health Qual Life Outcomes. 2004 Jun 29;2:32. (PMID: 15225377)
      CMAJ. 2016 Nov 1;188(16):E407-E414. (PMID: 27620630)
      J Adv Nurs. 2008 Apr;62(1):107-15. (PMID: 18352969)
      Eur J Cancer Care (Engl). 2018 May;27(3):e12837. (PMID: 29573500)
      Eur J Health Law. 2003 Sep;10(3):329-35. (PMID: 14733050)
      Palliat Med. 2021 Feb;35(2):447-454. (PMID: 33126842)
      Nurs Ethics. 2020 Nov;27(7):1501-1516. (PMID: 32436431)
      Palliat Med. 2013 Jan;27(1):27-37. (PMID: 23104511)
      Qual Health Res. 2005 Nov;15(9):1277-88. (PMID: 16204405)
      J Pain Symptom Manage. 2001 Sep;22(3):717-26. (PMID: 11532585)
      Palliat Support Care. 2023 Apr;21(2):254-260. (PMID: 35642744)
      Palliat Med. 2015 May;29(5):399-419. (PMID: 25680380)
      J Palliat Med. 2018 Nov;21(11):1573-1579. (PMID: 30095328)
      JAMA Netw Open. 2019 Aug 2;2(8):e198648. (PMID: 31397857)
      BMC Palliat Care. 2021 Dec 8;20(1):185. (PMID: 34876104)
      J Pain Symptom Manage. 2021 Mar;61(3):513-521.e8. (PMID: 32835830)
      J Pain Symptom Manage. 2020 Jun;59(6):1287-1303.e1. (PMID: 31881289)
      Palliat Med. 2017 Mar;31(3):197-211. (PMID: 27492159)
      Curr Opin Support Palliat Care. 2010 Sep;4(3):163-9. (PMID: 20592608)
      Lancet. 2012 Sep 8;380(9845):908-15. (PMID: 22789501)
      Palliat Support Care. 2019 Oct;17(5):590-595. (PMID: 30887936)
      Palliat Med. 2021 Jun;35(6):1052-1070. (PMID: 33860715)
      BMJ Support Palliat Care. 2021 Mar;11(1):107-114. (PMID: 30826737)
      J Pain Symptom Manage. 2007 May;33(5):500-5. (PMID: 17482037)
      Palliat Support Care. 2020 Oct;18(5):580-588. (PMID: 32100661)
      BMJ. 2008 Apr 19;336(7649):864-7. (PMID: 18420693)
      Palliat Med. 2019 Sep;33(8):1091-1105. (PMID: 31244384)
      Can J Aging. 2019 Sep;38(3):384-396. (PMID: 30626453)
      Death Stud. 2022;46(8):1982-1991. (PMID: 33538647)
      Ann Palliat Med. 2021 Mar;10(3):3540-3553. (PMID: 32921084)
      J Pain Symptom Manage. 2020 Jan;59(1):152-164. (PMID: 31404643)
      Palliat Med. 2006 Oct;20(7):685-92. (PMID: 17060267)
      Soc Sci Med. 2022 Jan;293:114647. (PMID: 34902648)
      BMC Palliat Care. 2018 Jul 23;17(1):96. (PMID: 30037346)
      J Pain Symptom Manage. 2022 Feb;63(2):244-250.e2. (PMID: 34509596)
      Death Stud. 2023;47(9):1033-1043. (PMID: 36579696)
      Qual Quant. 2018;52(4):1893-1907. (PMID: 29937585)
      BMJ Support Palliat Care. 2024 Nov 20;14(4):462-469. (PMID: 35710709)
      BMC Med Ethics. 2019 Apr 5;20(1):23. (PMID: 30953490)
      Lancet Healthy Longev. 2021 Sep;2(9):e593-e600. (PMID: 36098155)
      J Pain Symptom Manage. 2018 Apr;55(4):1085-1094. (PMID: 29288877)
      Crisis. 2020 Jul;41(4):255-272. (PMID: 31657640)
      Med Anthropol Q. 2018 Dec;32(4):481-497. (PMID: 30014621)
      Rev Esc Enferm USP. 2016 Jul-Aug;50(4):675-682. (PMID: 27680055)
    • Contributed Indexing:
      Keywords: assisted dying; euthanasia; patients; relatives; support needs
    • Publication Date:
      Date Created: 20241213 Date Completed: 20241213 Latest Revision: 20241214
    • Publication Date:
      20241214
    • Accession Number:
      PMC11634608
    • Accession Number:
      10.3389/ijph.2024.1606878
    • Accession Number:
      39670173