A qualitative research on reproductive concerns of the patients with Peutz-Jeghers syndrome.

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  • Additional Information
    • Source:
      Publisher: Taylor & Francis Country of Publication: England NLM ID: 8308648 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1743-8942 (Electronic) Linking ISSN: 0167482X NLM ISO Abbreviation: J Psychosom Obstet Gynaecol Subsets: MEDLINE
    • Publication Information:
      Publication: Sept. 2015- : Abingdon, Oxon, UK : Taylor & Francis
      Original Publication: Utrecht, the Netherlands : Bohn, Scheltema & Holkema, [1982-
    • Subject Terms:
      Peutz-Jeghers Syndrome*/psychology ; Peutz-Jeghers Syndrome*/complications ; Qualitative Research* ; Social Support*; Humans ; Female ; Male ; Adult ; Young Adult ; Infertility/psychology
    • Abstract:
      Objectives: To gain a deeper understanding of the real experiences and needs of the patients of Peutz-Jeghers syndrome (PJS) with fertility concerns.
      Design: A qualitative study.
      Methods: Phenomenological research and Semi-structured method were conducted with the patients of PJS ( N  = 16), and the interview data were analyzed using inductive content analysis strategies.
      Results: 16 patients were interviewed, including 13 women and 3 men partners. We identified 5 themes, including: (i) Heritability of disease, (ii) Potential risks of reproduction; (iii) The difficulties in raising children; (iv) family and social support. (V) Need support from multiple sources.
      Conclusion: The findings of this study demonstrate that patients with Peutz-Jeghers syndrome (PJS) who are of childbearing age experience various reproductive concerns and other manifestations. Therefore, it is essential to offer individualized psychological interventions for PJS patients at different psychological stages, with the support of healthcare professionals, family, and social networks.
    • Contributed Indexing:
      Keywords: Peutz-Jeghers syndrome; fertility preservation; genetic counseling; qualitative research; reproductive concerns
    • Publication Date:
      Date Created: 20240922 Date Completed: 20240922 Latest Revision: 20240922
    • Publication Date:
      20240923
    • Accession Number:
      10.1080/0167482X.2024.2405615
    • Accession Number:
      39306834