Disclosure Decisions of Workers Living with a Chronic Health Condition Causing Disability at Work: Are Decisions to Disclose to Co-workers and Supervisors Different?

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Publisher: Springer Country of Publication: Netherlands NLM ID: 9202814 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1573-3688 (Electronic) Linking ISSN: 10530487 NLM ISO Abbreviation: J Occup Rehabil Subsets: MEDLINE

Publication: Dordrecht, the Netherlands : Springer
Original Publication: New York : Plenum Press, c1991-

Purpose: Individuals living with chronic physical or mental health/cognitive conditions must make decisions that are sometimes difficult about whether to disclose health information at work. This research investigated workers' decisions to not to disclose any information at work, disclosure to a supervisor only, co-workers only, or to both a supervisor and co-workers. It also examined personal, health, and work factors associated with disclosure to different groups compared to not disclosing information.
Methods: Employed workers with a physical or mental health/cognitive condition were recruited for a cross-sectional survey from a national panel of Canadians. Respondents were asked about disclosure decisions, demographics, health, working experience, work context, and work perceptions. Multinomial logistic regressions examined predictors of disclosure.
Results: There were 882 respondents (57.9% women). Most had disclosed to both co-workers and supervisors (44.2%) with 23.6% disclosing to co-workers only and 7% to a supervisor only. Age, health variability, and number of accommodations used were significant predictors of disclosure for all groups. Job disruptions were associated with disclosure to supervisors only and pain and comfort sharing were associated with co-worker disclosure.
Conclusion: The findings highlight that disclosure to co-workers is common despite being an overlooked group in workplace disclosure research. Although many similar factors predicted disclosure to different groups, further research on workplace environments and culture would be useful in efforts to enhance workplace support.
(© 2024. The Author(s).)

Canadian Survey on Disability, 2017 to 2022: Statistics Canada 2023 https://www150.statcan.gc.ca/n1/daily-quotidien/231201/dq231201b-eng.htm.
Holland P, Clayton S. Navigating employment retention with a chronic health condition: a meta-ethnography of the employment experiences of people with musculoskeletal disorders in the UK. Disabil Rehabil. 2020;42(8):1071–1086. https://doi.org/10.1080/09638288.2018.1519041 . (PMID: 10.1080/09638288.2018.151904130696296)
Magee W. Effects of illness and disability on job separation. Soc Sci Med. 2004;58(6):1121–1135. https://doi.org/10.1016/S0277-9536(03)00284-3 . (PMID: 10.1016/S0277-9536(03)00284-314723907)
Morris SP. The dynamics of disability: progressive, recurrent or fluctuating limitations. Ottawa: Statistics Canada. Statistque Canada; 2019.
Devlin RF, Pothier D. Critical disability theory: essays in philosophy, politics, policy, and law. Vancouver: UBC Press; 2006.
Shah S. Career success of disabled high-flyers. Jessica Kingsley Publishers; 2005.
Shahidi FV, Jetha A, Kristman V, Smith PM, Gignac MA. The employment quality of persons with disabilities: findings from a national survey. J Occup Rehabil. 2023;33(4):785–795. https://doi.org/10.1007/s10926-023-10113-7 . (PMID: 10.1007/s10926-023-10113-73704312510090748)
Toth KE, Yvon F, Villotti P, Lecomte T, Lachance J-P, Kirsh B, et al. Disclosure dilemmas: how people with a mental health condition perceive and manage disclosure at work. Disabil Rehabil. 2022;44(25):7791–7801. https://doi.org/10.1080/09638288.2021.1998667 . (PMID: 10.1080/09638288.2021.199866734762548)
Gignac MAM, Jetha A, Ginis KAM, Ibrahim S. Does it matter what your reasons are when deciding to disclose (or not disclose) a disability at work? The association of workers’ approach and avoidance goals with perceived positive and negative workplace outcomes. J Occup Rehabil. 2021. https://doi.org/10.1007/s10926-020-09956-1 . (PMID: 10.1007/s10926-020-09956-1335287328298326)
Gignac MAM, Cao X. “Should I tell my employer and coworkers I have arthritis?” A longitudinal examination of self-disclosure in the work place. Arthritis Rheum. 2009;61(12):1753–1761. https://doi.org/10.1002/art.24889 . (PMID: 10.1002/art.2488919950308)
Bogaers R, Geuze E, van Weeghel J, Leijten F, van de Mheen D, Greenberg N, et al. Mental health issues and illness and substance use disorder (non-)disclosure to a supervisor: a cross-sectional study on beliefs, attitudes and needs of military personnel. BMJ Open. 2023;13(4):e063125-e. https://doi.org/10.1136/bmjopen-2022-063125 . (PMID: 10.1136/bmjopen-2022-063125)
Afifi WA, Guerrero LK. Motivations underlying topic avoidance in close relationships. Balancing the secrets of private disclosures. LEA’s communication series. Mahwah: Lawrence Erlbaum Associates Publishers; 2000. p. 165–79.
Chaudoir SR, Fisher JD. The disclosure processes model: understanding disclosure decision making and postdisclosure outcomes among people living with a concealable stigmatized identity. Psychol Bull. 2010;136(2):236–256. https://doi.org/10.1037/a0018193 . (PMID: 10.1037/a0018193201925622922991)
Petronio S. Brief status report on communication privacy management theory. J Fam Commun. 2013;13(1):6–14. https://doi.org/10.1080/15267431.2013.743426 . (PMID: 10.1080/15267431.2013.743426)
Greene K. An integrated model of health disclosure decision-making. Uncertainty, information management, and disclosure decisions: Theories and applications. New York: Routledge/Taylor & Francis Group; 2009. p. 226–53.
Brohan E, Henderson C, Wheat K, Malcolm E, Clement S, Barley EA, et al. Systematic review of beliefs, behaviours and influencing factors associated with disclosure of a mental health problem in the workplace. BMC Psychiat. 2012;12(1):11. https://doi.org/10.1186/1471-244X-12-11 . (PMID: 10.1186/1471-244X-12-11)
Brouwers EPM, Joosen MCW, van Zelst C, van Weeghel J. To disclose or not to disclose: a multi-stakeholder focus group study on mental health issues in the work environment. J Occup Rehabil. 2020;30(1):84–92. https://doi.org/10.1007/s10926-019-09848-z . (PMID: 10.1007/s10926-019-09848-z31410722)
Gignac MAM, Bowring J, Shahidi F, Kristman V, Cameron J, Jetha A. Workplace disclosure decisions of older workers wanting to remain employed: a qualitative study of factors considered when contemplating revealing or concealing support needs. Work Aging Retirement. 2022. https://doi.org/10.1093/workar/waac029 . (PMID: 10.1093/workar/waac029)
Gignac MAM, Bowring J, Jetha A, Beaton DE, Breslin FC, Franche R-L, et al. Disclosure, privacy and workplace accommodation of episodic disabilities: organizational perspectives on disability communication-support processes to sustain employment. J Occup Rehabil. 2021;31(1):153–165. https://doi.org/10.1007/s10926-020-09901-2 . (PMID: 10.1007/s10926-020-09901-232410153)
Irvine A. Something to declare? The disclosure of common mental health problems at work. Disability & society. 2011;26(2):179–192. https://doi.org/10.1080/09687599.2011.544058 . (PMID: 10.1080/09687599.2011.544058)
Jones KP, King EB. Managing concealable stigmas at work: a review and multilevel model. J Manag. 2014;40(5):1466–1494. https://doi.org/10.1177/0149206313515518 . (PMID: 10.1177/0149206313515518)
Garcia JA, Crocker J. Reasons for disclosing depression matter: The consequences of having egosystem and ecosystem goals. Soc Sci Med. 2008;67(3):453–462. https://doi.org/10.1016/j.socscimed.2008.03.016 . (PMID: 10.1016/j.socscimed.2008.03.01618450349)
Lindsay S, Cagliostro E, Carafa G. A systematic review of workplace disclosure and accommodation requests among youth and young adults with disabilities. Disabil Rehabil. 2018;40(25):2971–2986. https://doi.org/10.1080/09638288.2017.1363824 . (PMID: 10.1080/09638288.2017.136382428797182)
Munir F, Leka S, Griffiths A. Dealing with self-management of chronic illness at work: predictors for self-disclosure. Soc Sci Med. 2005;60(6):1397–1407. https://doi.org/10.1016/j.socscimed.2004.07.012 . (PMID: 10.1016/j.socscimed.2004.07.01215626533)
Smith SA, Brunner SR. To reveal or conceal: using communication privacy management theory to understand disclosures in the workplace. Manag Commun Q. 2017;31(3):429–446. https://doi.org/10.1177/0893318917692896 . (PMID: 10.1177/0893318917692896)
Stutterheim SE, Brands R, Baas I, Lechner L, Kok G, Bos AER. HIV status disclosure in the workplace: positive and stigmatizing experiences of health care workers living with HIV. J Assoc Nurses AIDS Care. 2017;28(6):923–937. https://doi.org/10.1016/j.jana.2017.06.014 . (PMID: 10.1016/j.jana.2017.06.01428751112)
Toth KE, Dewa CS. Employee decision-making about disclosure of a mental disorder at work. J Occup Rehabil. 2014;24(4):732–746. https://doi.org/10.1007/s10926-014-9504-y . (PMID: 10.1007/s10926-014-9504-y24604575)
Chaudoir SR, Quinn DM. Revealing concealable stigmatized identities: the impact of disclosure motivations and positive first-disclosure experiences on fear of disclosure and well-being. J Soc Issues. 2010;66(3):570–584. https://doi.org/10.1111/j.1540-4560.2010.01663.x . (PMID: 10.1111/j.1540-4560.2010.01663.x261609854494783)
Sconfienza C, Lindfors P, Lantz Friedrich A, Sverke M. Social support at work and mental distress: a three-wave study of normal, reversed, and reciprocal relationships. J Occup Health. 2019;61(1):91–100. https://doi.org/10.1002/1348-9585.12020 . (PMID: 10.1002/1348-9585.12020306983456499362)
Blomberg S, Rosander M. Exposure to bullying behaviours and support from co-workers and supervisors: a three-way interaction and the effect on health and well-being. Int Arch Occup Environ Health. 2020;93(4):479–490. https://doi.org/10.1007/s00420-019-01503-7 . (PMID: 10.1007/s00420-019-01503-731828422)
Bradley L, McDonald P, Cox S. The critical role of co-worker involvement: an extended measure of the workplace environment to support work–life balance. J Manag Org. 2019. https://doi.org/10.1017/jmo.2019.65 . (PMID: 10.1017/jmo.2019.65)
Baldridge DC, Swift ML. Withholding requests for disability accommodation: the role of individual differences and disability attributes. J Manag. 2013;39(3):743–762. https://doi.org/10.1177/0149206310396375 . (PMID: 10.1177/0149206310396375)
Qiu J, Kesebir S, Günaydin G, Selçuk E, Wasti SA. Gender differences in interpersonal trust: disclosure behavior, benevolence sensitivity and workplace implications. Organ Behav Hum Decis Process. 2022;169: 104119. https://doi.org/10.1016/j.obhdp.2022.104119 . (PMID: 10.1016/j.obhdp.2022.104119)
Kaptein SA, Gignac MAM, Badley EM. Differences in the workforce experiences of women and men with arthritis disability: a population health perspective. Arthritis Rheum. 2009;61(5):605–613. https://doi.org/10.1002/art.24427 . (PMID: 10.1002/art.2442719405013)
Jetha A, Martin Ginis KA, Ibrahim S, Gignac MAM. The working disadvantaged: the role of age, job tenure and disability in precarious work. BMC Public Health. 2020;20(1):1900. https://doi.org/10.1186/s12889-020-09938-1 . (PMID: 10.1186/s12889-020-09938-1333029307727192)
Jetha A, Gignac MA, Ibrahim S, Martin Ginis KA. Disability and sex/gender intersections in unmet workplace support needs: findings from a large Canadian survey of workers. Am J Ind Med. 2021;64(2):149–161. (PMID: 10.1002/ajim.2320333231897)
Ginis KAM, Jetha A, Gignac MA. Experiential aspects of employment and their relationship with work outcomes: a cross-sectional study using a novel measure of participation in workers with and without physical disabilities. Disabil Health J. 2023;16(3): 101448. (PMID: 10.1016/j.dhjo.2023.101448)
Grondin C. A new survey measure of disability: the Disability Screening Questions (DSQ). Statistics Canada/Statistique Canada; 2016.
Yarlas A, Maher SM, Bayliss MS, Lovley A, Cappelleri JC, DiBonaventura MD. Psychometric validation of the work productivity and activity impairment questionnaire in ulcerative colitis: results from a systematic literature review. J Patient Rep Outcomes. 2018;2(1):62. https://doi.org/10.1186/s41687-018-0088-8 . (PMID: 10.1186/s41687-018-0088-8305472756292832)
Zhang W, Bansback N, Boonen A, Young A, Singh A, Anis AH. Validity of the work productivity and activity impairment questionnaire–general health version in patients with rheumatoid arthritis. Arthritis Res Ther. 2010;12(5):R177. https://doi.org/10.1186/ar3141 . (PMID: 10.1186/ar3141208608372991008)
Carstensen LL. Social and emotional patterns in adulthood: support for socioemotional selectivity theory. Psychol Aging. 1992;7(3):331–338. https://doi.org/10.1037/0882-7974.7.3.331 . (PMID: 10.1037/0882-7974.7.3.3311388852)
Christiansen CH, Matuska KM. Lifestyle balance: a review of concepts and research. J Occup Sci. 2006;13(1):49–61. https://doi.org/10.1080/14427591.2006.9686570 . (PMID: 10.1080/14427591.2006.9686570)
Hendricks J. Considering life course concepts. J Gerontol B Psychol Sci Soc Sci. 2012;67(2):226–231. https://doi.org/10.1093/geronb/gbr147 . (PMID: 10.1093/geronb/gbr14722391748)
Neugarten BL. Time, age, and the life cycle. Am J Psychiatry. 1979;136(7):887–894. https://doi.org/10.1176/ajp.136.7.887 . (PMID: 10.1176/ajp.136.7.887453348)
Gignac MAM, Backman CL, Davis AM, Lacaille D, Cao X, Badley EM. Social role participation and the life course in healthy adults and individuals with osteoarthritis: are we overlooking the impact on the middle-aged? Soc Sci Med. 2013;81:87–93. https://doi.org/10.1016/j.socscimed.2012.12.013 . (PMID: 10.1016/j.socscimed.2012.12.01323312300)
Colella A. Coworker distributive fairness judgments of the workplace accommodation of employees with disabilities. Acad Manag Rev. 2001;26(1):100–116. https://doi.org/10.2307/259397 . (PMID: 10.2307/259397)
Miller BK, Werner S. Predictors of helping behavior toward coworkers with disabilities. J Appl Soc Psychol. 2007;37(11):2660–2687. https://doi.org/10.1111/j.1559-1816.2007.00275.x . (PMID: 10.1111/j.1559-1816.2007.00275.x)
Van Beukering IE, Sampogna G, Bakker M, Joosen MCW, Dewa CS, van Weeghel J, et al. Dutch workers’ attitudes towards having a coworker with mental health issues or illness: a latent class analysis. Front Psychiat. 2023;14:1212568. https://doi.org/10.3389/fpsyt.2023.1212568 . (PMID: 10.3389/fpsyt.2023.1212568)
Janssens KME, van Weeghel J, Dewa C, Henderson C, Mathijssen JJP, Joosen MCW, et al. Line managers’ hiring intentions regarding people with mental health problems: a cross-sectional study on workplace stigma. Occupation Environ Med (London, England). 2021;78(8):593–599. https://doi.org/10.1136/oemed-2020-106955 . (PMID: 10.1136/oemed-2020-106955)

#890-2016-3002 Healthy and Productive Work (HPW) partnership grant from the Social Sciences and Humanities Research Council of Canada (SSHRC) and the Canadian Institutes of Health Research (CIHR); #890-2016-3002 Healthy and Productive Work (HPW) partnership grant from the Social Sciences and Humanities Research Council of Canada (SSHRC) and the Canadian Institutes of Health Research (CIHR); #890-2016-3002 Healthy and Productive Work (HPW) partnership grant from the Social Sciences and Humanities Research Council of Canada (SSHRC) and the Canadian Institutes of Health Research (CIHR); #890-2016-3002 Healthy and Productive Work (HPW) partnership grant from the Social Sciences and Humanities Research Council of Canada (SSHRC) and the Canadian Institutes of Health Research (CIHR)

Keywords: Chronic disease; Co-workers; Disability; Disclosure; Employment; Supervisors

Date Created: 20240913 Latest Revision: 20240913

20240914

10.1007/s10926-024-10235-6

39269512