Parental impact during and after neonatal intensive care admission.

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  • Additional Information
    • Source:
      Publisher: W.B. Saunders Country of Publication: United States NLM ID: 7801132 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1558-075X (Electronic) Linking ISSN: 01460005 NLM ISO Abbreviation: Semin Perinatol Subsets: MEDLINE
    • Publication Information:
      Publication: Philadelphia, PA : W.B. Saunders
      Original Publication: New York, Grune & Stratton.
    • Subject Terms:
      Parents*/psychology ; Intensive Care Units, Neonatal* ; Professional-Family Relations*; Humans ; Infant, Newborn ; Intensive Care, Neonatal/methods ; Communication
    • Abstract:
      Parents play a pivotal role in neurodevelopmental outcomes of their children in the neonatal intensive care unit (NICU) and beyond. Integration of parents in clinical care and research is synergistic. Engaged parents yield more comprehensive clinical care and more robust and meaningful research products. Subsequently, successful clinical and research efforts improve outcomes for children. We review strategies for parental integration into NICU clinical care and research, including parental involvement in therapeutic interventions and neurodevelopmental care, and effective communication strategies for clinicians and researchers. We discuss challenges in neonatal trials and emphasize the need for building a culture of research, collaborative partnerships with patient advocacy organizations, and ongoing support beyond the NICU. Overall, we call for recognizing and fostering the impactful role of parents as teammates with clinicians and researchers in optimizing neurodevelopmental outcomes in the NICU and beyond.
      Competing Interests: Declaration of competing interest The authors declare that they have no competing interests.
      (Copyright © 2024 Elsevier Inc. All rights reserved.)
    • Contributed Indexing:
      Keywords: Family-centered care; Family-integrated care; NICU; Neonatal clinical trials; Neurodevelopmental outcomes; Parents; Patient advocacy
    • Publication Date:
      Date Created: 20240704 Date Completed: 20240805 Latest Revision: 20240805
    • Publication Date:
      20240806
    • Accession Number:
      10.1016/j.semperi.2024.151926
    • Accession Number:
      38964994