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End-of-life care and grief: study conducted with family members of COVID-19 victims.
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- Author(s): Lucena PLC;Lucena PLC; Alves AMPM; Alves AMPM; Batista PSS; Batista PSS; Agra G; Agra G; Lordão AV; Lordão AV; Costa SFGD; Costa SFGD
- Source:
Ciencia & saude coletiva [Cien Saude Colet] 2024 Jul; Vol. 29 (7), pp. e02602024. Date of Electronic Publication: 2024 Feb 19.- Publication Type:
Journal Article- Language:
Portuguese; English - Source:
- Additional Information
- Transliterated Title: Cuidados no final de vida e luto: estudo com familiares de vítimas da COVID-19.
- Source: Publisher: Associação Brasileira de Pós-Graduação em Saúde Coletiva Country of Publication: Brazil NLM ID: 9713483 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1678-4561 (Electronic) Linking ISSN: 14138123 NLM ISO Abbreviation: Cien Saude Colet Subsets: MEDLINE
- Publication Information: Original Publication: Rio de Janeiro : Associação Brasileira de Pós-Graduação em Saúde Coletiva, [1996]-
- Subject Terms:
- Abstract: This article aims to investigate the implications of grief among family members of COVID-19 victims; verify the prevalence of prolonged grief symptoms; and identify family members' expectations regarding end-of-life care for their loved ones affected by COVID-19. Descriptive, cross-sectional research, with a quantitative-qualitative approach. Data collection was performed using an online questionnaire, guided by the PG-13 instrument. Descriptive and inferential statistics were applied. The results were presented descriptively and with the aid of tables. The study sample included 142 family members, mostly female, who presented emotional, physical, social, and financial implications as a result of grief. A prevalence of prolonged grief symptoms was observed in 11.4% of the mourners with more than six months and 29.6% of those with less than six months. Three thematic categories were identified: transparency in communicating the health situation, access to moments of farewell, and promotion of comfort in care actions. The symptoms of Prolonged Grief Disorder have a significant association with the degree of kinship. In final care, family members' expectations were classified as: permission for a dignified farewell, effective communication, and promotion of comfort and care.
- Contributed Indexing: Local Abstract: [Publisher, Portuguese] O objetivo deste artigo é investigar implicações do luto em familiares de vítimas da COVID-19; verificar a prevalência de sintomas de luto prolongado; identificar expectativas dos familiares acerca do cuidado em fim de vida de seus entes acometidos por COVID-19. Pesquisa descritiva, transversal, com abordagem quanti-qualitativa. Coleta de dados mediante questionário on-line, norteado pelo instrumento PG-13. Aplicou-se estatística descritiva e inferencial. Os resultados foram apresentados de forma descritiva e com auxílio de tabelas. Amostra de 142 familiares, maioria do sexo feminino, que apresentaram implicações emocionais, físicas, sociais e financeiras em decorrência do luto. Houve prevalência de sintomas de luto prolongado em 11,4% dos enlutados com mais de seis meses e 29.6% dos que tinham menos de seis meses. Foram identificadas três categorias temáticas: transparência na comunicação da situação de saúde, acesso a momentos de despedida e promoção de conforto nas ações de cuidado. Os sintomas de Transtorno de Luto Prolongado possuem associação significativa com o grau de parentesco. Nos cuidados finais as expectativas dos familiares foram classificadas em: permissão para despedida digna, comunicação efetiva e promoção de conforto e cuidado.
- Publication Date: Date Created: 20240703 Date Completed: 20240703 Latest Revision: 20240703
- Publication Date: 20240703
- Accession Number: 10.1590/1413-81232024297.02602024
- Accession Number: 38958311
- Transliterated Title:
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