A Research Agenda to Support Families of People With Intellectual and Developmental Disabilities With Intersectional Identities.

Publisher: American Association on Intellectual and Developmental Disabilities Country of Publication: United States NLM ID: 101299965 Publication Model: Print Cited Medium: Internet ISSN: 1934-9556 (Electronic) Linking ISSN: 19349491 NLM ISO Abbreviation: Intellect Dev Disabil Subsets: MEDLINE

Original Publication: Washington, DC : American Association on Intellectual and Developmental Disabilities

Developmental Disabilities* ; Intellectual Disability*/psychology ; Family*; Humans ; Social Support ; Research

Family members provide significant practical and emotional support to people with intellectual and developmental disabilities (IDD) across the lifespan. In September 2022, the State of the Science Conference on Community Living: Engaging Persons With Intellectual and Developmental Disabilities From Underserved Racial, Ethnic, Linguistic, and Cultural Groups in Research was held. This article summarizes the efforts of the workgroup that developed research goals related to supporting families of people with IDD. The focus was on families with intersectional identities and minoritized communities. Recommended areas of future research include exploratory research to better understand the experiences of these families, perspectives of families with intersectional identities about the formal support system, funding for family support and services, and inclusive research strategies.
(©AAIDD.)

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90RTCP0003 United States ACL ACL HHS

Keywords: family support; intellectual and developmental disabilities; intersectionality; minoritized communities

Date Created: 20240527 Date Completed: 20240527 Latest Revision: 20240731

20240731

PMC11286222

10.1352/1934-9556-62.3.162

38802098