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Qualitative study of the lived experience of methylphenidate prescribed for children with a fetal alcohol spectrum disorder.
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- Author(s): Morin C;Morin C;Morin C; Doray B; Doray B; Doray B; Dumar C; Dumar C; Balit J; Balit J; Balit J; Bouscaren N; Bouscaren N; Spodenkiewicz M; Spodenkiewicz M; Spodenkiewicz M; Spodenkiewicz M; Spodenkiewicz M
- Source:European child & adolescent psychiatry [Eur Child Adolesc Psychiatry] 2024 Dec; Vol. 33 (12), pp. 4219-4235. Date of Electronic Publication: 2024 May 16.
- Publication Type:Journal Article
- Language:English
- Additional Information
- Source: Publisher: Country of Publication: Germany NLM ID: 9212296 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1435-165X (Electronic) Linking ISSN: 10188827 NLM ISO Abbreviation: Eur Child Adolesc Psychiatry Subsets: MEDLINE
- Publication Information: Publication: 2010- : Heidelberg : Springer Medizin
Original Publication: Toronto ; Lewiston, NY : Hogrefe & Huber, [1992- - Subject Terms: Methylphenidate*/therapeutic use ; Fetal Alcohol Spectrum Disorders*/psychology ; Fetal Alcohol Spectrum Disorders*/drug therapy ; Qualitative Research* ; Attention Deficit Disorder with Hyperactivity*/drug therapy ; Attention Deficit Disorder with Hyperactivity*/psychology ; Central Nervous System Stimulants*/therapeutic use; Humans ; Female ; Child ; Male ; Caregivers/psychology ; Pregnancy ; Medication Adherence/psychology
- Abstract: Fetal Alcohol Spectrum Disorders (FASD) refer to physical, cognitive, and behavioural symptoms in an individual whose mother consumed alcohol during pregnancy. It is the leading cause of non-genetic avoidable mental disability, with an estimated worldwide prevalence of 1%. Attention Deficit Hyperactivity Disorder (ADHD) diagnostic criteria are met for 50-80% of patients with FASD. Methylphenidate (MPH) is the first-line pharmacological treatment for ADHD. This study aims to explore the lived experience of children with FASD taking MPH and their caregivers to adapt prescribing modalities by considering different ways to administer the drugs. We hope to improve the therapeutic alliance between the children and their caregivers by gaining an insiders' view of the medication perception. Semi-structured interviews with children and their caregivers were conducted in this qualitative study. Data collection by purposive sampling continued until we reached theoretical sufficiency. Data were analysed using interpretative phenomenological analysis. We conducted 16 semi-structured interviews: 8 with the children aged 7-12, 5 boys and 3 girls and 8 with their caregivers. The analysis showed that inadequate palatability and capsule form experiences were the leading causes of children's non-adherence to the treatment. MPH appeared to be a valuable aid for caregivers even if they had concerns about its potential toxicity. However, it is necessary to identify caregivers' expectations concerning MPH to adapt the prescription in terms of choice of specialty and intake modalities. Regular support was required to reduce caregivers' fears of dependence, personality transformation and long-term adverse effects. Information on palatability should be given when prescribing MPH to children with ADHD as well as its possible side effects or toxicity. It highlights the need for further studies of the experience of palatability of drugs prescribed to children. When prescribing a treatment, children should be more involved in medical counselling and it is necessary to understand the child's perspectives to co-construct common representations for better therapeutical adherence.
Competing Interests: Declarations. Conflict of interest: The authors have no competing interests or potential conflicts to disclose. Ethics approval and consent to participate: An authorization was obtained from the French Commission Nationale de l'Informatique et des Libertés (2206739 v 0). All participants provided oral informed consent before inclusion. Consent for publication: All participants gave their consent. Ethics approval: An authorization was obtained from the French Commission Nationale de l'Informatique et des Libertés (2206739 v 0). Consent to participate: All children and their parents provided written consent before inclusion in the study.
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- Accession Number: 207ZZ9QZ49 (Methylphenidate)
0 (Central Nervous System Stimulants) - Publication Date: Date Created: 20240516 Date Completed: 20241204 Latest Revision: 20241204
- Publication Date: 20241204
- Accession Number: 10.1007/s00787-024-02457-z
- Accession Number: 38755318
- Source:
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