Population Level Mental Health Diagnoses for Youth with Intellectual/Developmental Disabilities Compared to Youth without Intellectual/Developmental Disabilities.

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    • Source:
      Publisher: Springer US Country of Publication: United States NLM ID: 101773609 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 2730-7174 (Electronic) Linking ISSN: 27307166 NLM ISO Abbreviation: Res Child Adolesc Psychopathol Subsets: MEDLINE
    • Publication Information:
      Original Publication: [New York] : Springer US, [2021]-
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    • Abstract:
      There is evidence in the literature that youth with intellectual/developmental disabilities (IDD) experience mental health issues to a greater extent compared to youth without IDD. In addition, transition from pediatric to adult services may be a period of increased anxiety and mental health problems for these youth. This study used a retrospective cohort design using population level administrative health data to compare mental health diagnoses between youth with IDD and youth without IDD; particularly examining the period when youth transition from pediatric health services to adult health services. In addition, this study compared the mental health of youth with various types of IDD (Down syndrome, autism, fetal alcohol syndrome and other rarer diagnoses). Results showed that at the population level youth with IDD have greater odds of anxiety/depression or psychotic illness than youth without IDD. Adjusted odds of anxiety/depression or psychotic illness also varied with age, income level, sex, and type of IDD. Youth with fetal alcohol syndrome had the greatest odds of both anxiety/depression and a psychotic illness. Odds of anxiety/depression increased from age 15-19 years old. Odds of a psychotic illness increased from age 15 to age 24 years old.
      (© 2024. The Author(s), under exclusive licence to Springer Science+Business Media, LLC, part of Springer Nature.)
    • References:
      Anderson, L. L., Humphries, K., McDermott, S., Marks, B., Sisarak, J., & Larson, S. (2013). The state of the science of health and wellness for adults with intellectual and developmental disabilities. Intellectual and Developmental Disabilities, 51(5), 385–398. https://doi.org/10.1352/1934-9556-51.5.385 . (PMID: 10.1352/1934-9556-51.5.385243038254677669)
      Andresen, E. (2011). Epidemiology and Biostatistics. In D. Lollar & E. Andresen (Eds.), Public Health Perspectives on Disability Epidemiology to Ethics and Beyond. Springer Science.
      Ark, T. K., Kesselring, S., Hills, B., & McGrail, K. M. (2020). Population Data BC: Supporting population data science in British Columbia. International Journal of Population Data Science, 4(2), 14. https://doi.org/10.23889/ijpds.v4i2.1133 . (PMID: 10.23889/ijpds.v4i2.1133)
      Biggs, E. E., & Carter, E. W. (2016). Quality of life for transition-age youth with autism or intellectual disability. Journal of Autism and Developmental Disorders, 46(1), 190–204. https://doi.org/10.1007/s10803-015-2563-x . (PMID: 10.1007/s10803-015-2563-x26340956)
      British Columbia Ministry of Health [creator] (2021): Consolidation File (MSP Registration and Premium Billing). V2. Population Data BC [publisher]. Data Extract. MOH (2021) (2021). http://www.popdata.bc.ca/data .
      British Columbia Ministry of Health [creator] (2020): Medical Services Plan (MSP) Payment Information File. V2 Population Data BC [publisher]. Data Extract. MOH (2021) (n.d.). http://www.popdata.bc.ca/data .
      Brown, M., Higgins, A., & MacArthur, J. (2020). Transition from child to adult health services: A qualitative study of the views and experiences of families of young adults with intellectual disabilities. Journal of Clinical Nursing, 29(1–2), 195–207. https://doi.org/10.1111/jocn.15077 . (PMID: 10.1111/jocn.1507731610045)
      Burke, M. M., & Fujiura, G. T. (2013). Using secondary datasets to understand persons with developmental disabilities and their families. International Review of Research in Developmental Disabilities, 45, 257–280. https://doi.org/10.1016/B978-0-12-407760-7.00007-4 .
      Canadian Institute for Health Information [creator] (2020 and 2021): Discharge Abstract Database (Hospital Separations). V2 Population Data BC [publisher]. Data Extract. MOH (2021) (n.d.). http://www.popdata.bc.ca/data .
      Champions for Inclusive Health come together to create change: Special Olympics British Columbia. (n.d.). Retrieved January 22, (2020). from https://www.specialolympics.ca/british-columbia/news/champions-inclusive-health-come-together-create-change .
      Comer-HaGans, D., Weller, B. E., Story, C., & Holton, J. (2020). Developmental stages and estimated prevalence of coexisting mental health and neurodevelopmental conditions and service use in youth with intellectual disabilities, 2011–2012. Journal of Intellectual Disability Research, 64(3), 185–196. https://doi.org/10.1111/jir.12708 . (PMID: 10.1111/jir.1270831894615)
      Cvejic, R. C., & Trollor, J. N. (2018). Transition to adult mental health services for young people with an intellectual disability. Journal of Paediatrics and Child Health, 54(10), 1127–1130. https://doi.org/10.1111/jpc.14197 . (PMID: 10.1111/jpc.1419730294982)
      Doyle, A., O’Sullivan, M., Craig, S., & McConkey, R. (2020). People with intellectual disability in Ireland are still dying young. Journal of Applied Research in Intellectual Disabilities, 00, 1–9. https://doi.org/10.1111/jar.12853 . (PMID: 10.1111/jar.12853)
      Eligibility for Medical Services Plan. (2022). https://www2.gov.bc.ca/gov/content/health/health-drug-coverage/msp/bc-residents/eligibility-and-enrolment/are-you-eligible .
      Emerson, E., Glover, G., Hatton, C., & Wolstenholme, J. (2014). Trends in age-standardised mortality rates and life expectancy of people with learning disabilities in Sheffield over a 33-year period. Tizard Learning Disability Review, 19(2), 90–95. https://doi.org/10.1108/TLDR-01-2014-0003 . (PMID: 10.1108/TLDR-01-2014-0003)
      Florio, T., & Trollor, J. (2015). Mortality among a cohort of persons with an intellectual disability in New South Wales, Australia. Journal of Applied Research in Intellectual Disabilities, 28(5), 383–393. https://doi.org/10.1111/jar.12190 . (PMID: 10.1111/jar.1219025994286)
      Glasson, E. J., & Hussain, R. (2008). Linked data: Opportunities and challenges in disability research Linked data: Opportunities and challenges in disability research. Journal of Intellectual and Developmental Disability, 33(4), 265–291. https://doi.org/10.1080/13668250802441409 .
      Gotham, K., Brunwasser, S. M., & Lord, C. (2015). Depressive and anxiety symptom trajectories from school age through young adulthood in samples with Autism Spectrum Disorder and developmental delay. Journal of the American Academy of Child and Adolescent Psychiatry, 54(5), 369–376. www.jaacap.org. (PMID: 10.1016/j.jaac.2015.02.005259017734407021)
      Hepper, F., & Garralda, M. E. (2001). Psychiatric adjustment to leaving school in adolescents with intellectual disability: A pilot study. Journal of Intellectual Disability Research, 45(6), 521–525. https://doi.org/10.1046/j.1365-2788.2001.00367.x . (PMID: 10.1046/j.1365-2788.2001.00367.x11737539)
      Heslop, P., Blair, P. S., Fleming, P., Hoghton, M., Marriott, A., & Russ, L. (2014). The Confidential Inquiry into premature deaths of people with intellectual disabilities in the UK: A population-based study. The Lancet, 383(9920), 889–895. https://doi.org/10.1016/S0140-6736(13)62026-7 . (PMID: 10.1016/S0140-6736(13)62026-7)
      Hodapp, R. M., Goldman, S. E., & Urbano, R. C. (2013). Using secondary datasets in disability research: Special issues, special promise. International Review of Research in Developmental Disabilities, 45, 1–34. https://doi.org/10.1016/B978-0-12-407760-7.00001-3 . (PMID: 10.1016/B978-0-12-407760-7.00001-3)
      Hogan, D. P., Msall, M. E., & Drew, J. A. R. (2006). The developmental epidemiology of mental retardation and developmental disabilities. International Review of Research in Mental Retardation, 33, 213–245. https://doi.org/10.1016/S0074-7750(06)33009-1 .
      Hoyle, J. N., Laditka, J. N., & Laditka, S. B. (2020). Severe developmental disability and the transition to adulthood. Disability and Health Journal, 13(3), 100912. https://doi.org/10.1016/j.dhjo.2020.100912 . (PMID: 10.1016/j.dhjo.2020.10091232122799)
      Hudson, B. (2006). Making and missing connections: Learning disability services and the transition from adolescence to adulthood. Disability and Society, 21(1), 47–60. https://doi.org/10.1080/09687590500375366 . (PMID: 10.1080/09687590500375366)
      Jutte, D. P., Roos, L. L., & Brownell, M. D. (2011). Administrative record linkage as a tool for public health research. Annual Review of Public Health, 32, 91–108. https://doi.org/10.1146/annurev-publhealth-031210-100700 .
      Landes, S. D., McDonald, K. E., Wilmoth, J. M., & Carter Grosso, E. (2021). Evidence of continued reduction in the age-at-death disparity between adults with and without intellectual and/or developmental disabilities. Journal of Applied Research in Intellectual Disabilities, 34(3), 916–920. https://doi.org/10.1111/JAR.12840 . (PMID: 10.1111/JAR.1284033247487)
      Lin, E., Balogh, R., Cobigo, V., Ouellette-Kuntz, H., Wilton, A. S., & Lunsky, Y. (2013). Using administrative health data to identify individuals with intellectual and developmental disabilities: A comparison of algorithms. Journal of Intellectual Disability Research, 57(5), 462–477. https://doi.org/10.1111/jir.12002 . (PMID: 10.1111/jir.1200223116328)
      Lin, E., Balogh, R. S., Durbin, A., Holder, L., Gupta, N., Volpe, T., Isaacs, B. J., Weiss, J. A., & Lunsky, Y. (2019). Addressing gaps in the health care services used by adults with developmental disabilities in Ontario. https://www.ices.on.ca/publications/research-reports/addressing-gaps-in-the-health-care-services-used-by-adults-with-developmental-disabilities-in-ontario/ .
      Liu, G., Pearl, A. M., Kong, L., Brown, S. L., Ba, D., Leslie, D. L., & Murray, M. J. (2019). Risk factors for emergency department utilization among adolescents with Autism Spectrum Disorder. Journal of Autism and Developmental Disorders, 49(11), 4455–4467. https://doi.org/10.1007/s10803-019-04166-y . (PMID: 10.1007/s10803-019-04166-y31414259)
      Lunsky, Y., & Balogh, R. (2010). Dual diagnosis: A national study of psychiatric hospitalization patterns of people with developmental disability. Canadian Journal of Psychiatry, 55(11), 721–728.
      Lunsky, Y., Lake, J. K., Durbin, J., Perry, A., Bullock, H., Morris, S., & Lee, J. S. (2014). Understanding and improving care for individuals with intellectual and developmental disabilities in the emergency department. International Review of Research in Developmental Disabilities, 47, 1–37. https://doi.org/10.1016/B978-0-12-800278-0.00001-4 .
      Marquis, S., Lunsky, Y., McGrail, K. M., & Baumbusch, J. (2023). Population level administrative data evidence of visits to the emergency department by youth with intellectual/developmental disabilities in BC, Canada. The American Journal of Emergency Medicine, 69, 52–57. https://doi.org/10.1016/J.AJEM.2023.04.006 . (PMID: 10.1016/J.AJEM.2023.04.00637058981)
      Nathenson, R. A., & Zablotsky, B. (2017). The transition to the adult health care system among youths with Autism Spectrum Disorder. Psychiatric Services, 68(7), 735–738. https://doi.org/10.1176/appi.ps.201600239 . (PMID: 10.1176/appi.ps.20160023928292222)
      Patja, K., Iivanainen, M., Vesala, H., Oksanen, H., & Ruoppila, I. (2000). Life expectancy of people with intellectual disability: A 35-year follow-up study. Journal of Intellectual Disability Research, 44(5), 591–599. https://doi.org/10.1046/j.1365-2788.2000.00280.x . (PMID: 10.1046/j.1365-2788.2000.00280.x11079356)
      Piccoli, S., Pizzighello, S., & Martinuzzi, A. (2019). Changes in psychiatric diagnoses during the transition phase from childhood to adulthood in a group of patients with intellectual disability. Adolescent Psychiatry, 10(1), 41–47. https://doi.org/10.2174/2210676609666190702150358 .
      Reale, L., & Bonati, M. (2015). Mental disorders and transition to adult mental health services: A scoping review. European Psychiatry, 30(8), 932–942. https://doi.org/10.1016/j.eurpsy.2015.07.011 . (PMID: 10.1016/j.eurpsy.2015.07.01126647869)
      Robertson, J., Hatton, C., Baines, S., & Emerson, E. (2015). Systematic reviews of the health or health care of people with intellectual disabilities: A systematic review to identify gaps in the evidence base. Journal of Applied Research in Intellectual Disabilities, 28(6), 455–523. https://doi.org/10.1111/jar.12149 . (PMID: 10.1111/jar.1214925826389)
      Rydzewska, E., Fleming, M., Mackay, D., Young-Southward, G., Blacher, J., Bolourian, Y., Widaman, K., & Cooper, S. A. (2020). General health status in young people with intellectual disabilities with and without Down syndrome in, and transitioning from, special education: Findings from the National Longitudinal transitions Study-2. Journal of Intellectual Disability Research, 64(12), 895–907. https://doi.org/10.1111/jir.12781 . (PMID: 10.1111/jir.1278133047429)
      Schlenz, A. M., Carpenter, L. A., Bradley, C., Charles, J., & Boan, A. (2015). Age differences in emergency department visits and inpatient hospitalizations in preadolescent and adolescent youth with Autism Spectrum disorders. Journal of Autism and Developmental Disorders, 45(8), 2382–2391. https://doi.org/10.1007/s10803-015-2405-x . (PMID: 10.1007/s10803-015-2405-x25739694)
      Shea, L. L., Xie, M., Turcotte, P., Marcus, S., Field, R., Newschaffer, C., & Mandell, D. (2018). Service use and associated expenditures among adolescents with Autism Spectrum Disorder transitioning to adulthood. Journal of Autism and Developmental Disorders, 48(9), 3223–3227. https://doi.org/10.1007/s10803-018-3563-4 . (PMID: 10.1007/s10803-018-3563-429627932)
      Spady, D. W., Schopflocher, D. P., Svenson, L. W., & Thompson, A. H. (2001). Prevalence of mental disorders in children living in Alberta, Canada, as determined from physician billing data. Archives of Pediatrics & Adolescent Medicine, 155(10), 1153–1159. https://doi.org/10.1001/ARCHPEDI.155.10.1153 . (PMID: 10.1001/ARCHPEDI.155.10.1153)
      Stankiewicz, E., Ouellette-Kuntz, H., McIsaac, M., Shooshtari, S., & Balogh, R. (2018). Patterns of mortality among adults with intellectual and developmental disabilities in Ontario. Canadian Journal of Public Health, 109(5–6), 866–872. https://doi.org/10.17269/s41997-018-0124-8 . (PMID: 10.17269/s41997-018-0124-8301516736964400)
      Statistical Analysis System, Version 9.4. (n.d.). In SAS Institute Inc.
      Statistics Canada (2009): Statistics Canada Income Band Data. Catalogue Number: 13C0016. V2. Population Data BC. Data Extract. Population Data BC (2021). (n.d.). http://www.popdata.bc.ca/data .
      Sullivan, W. F., Diepstra, H., Heng, J., Ally, S., Bradley, E., Casson, I., Hennen, B., Kelly, M., Korossy, M., McNeil, K., Abells, D., Amaria, K., Boyd, K., Gemmill, M., Grier, E., Kennie-Kaulbach, N., Ketchell, M., Ladouceur, J., Lepp, A., & Witherbee, S. (2018). Primary care of adults with intellectual and developmental disabilities: 2018 Canadian consensus guidelines. Canadian Family Physician, 64(4), 254. /pmc/articles/PMC5897068/. (PMID: 296506025897068)
      Taylor, J. L., & Gotham, K. O. (2016). Cumulative life events, traumatic experiences, and psychiatric symptomatology in transition-aged youth with Autism Spectrum Disorder. Journal of Neurodevelopmental Disorders, 8(1), 28. https://doi.org/10.1186/s11689-016-9160-y . (PMID: 10.1186/s11689-016-9160-y274683154962443)
      The Learning Disability Mortality Review (LeDeR) Programme Annual Report 2018. (2018). www.hqip.org.uk/national-programmes .
      Tint, A., Brown, H. K., Chen, S., Lai, M. C., Tarasoff, L. A., Vigod, S. N., Parish, S., Havercamp, S. M., & Lunsky, Y. (2021). Health characteristics of reproductive-aged autistic women in Ontario: A population-based, cross-sectional study. Autism, 25(4), 1114–1124. https://doi.org/10.1177/1362361320982819 . (PMID: 10.1177/1362361320982819334679148089036)
      Warton, M. E. (2020). Time After Time: Difference-in-Differences and Interrupted Time Series Models in SAS ®. https://support.sas.com/resources/papers/proceedings20/4674-2020.pdf .
      Warton, M. E., Parker, M. M., & Karter, A. J. (2016). How D-I-D you do that? Basic difference-in-differences models in SAS.
      Weiss, J. A., Isaacs, B., Diepstra, H., Wilton, A. S., Brown, H. K., McGarry, C., & Lunsky, Y. (2018). Health concerns and health service utilization in a population cohort of young adults with Autism Spectrum Disorder. Journal of Autism and Developmental Disorders, 48(1), 36–44. https://doi.org/10.1007/s10803-017-3292-0 . (PMID: 10.1007/s10803-017-3292-028900771)
      Young-Southward, G., Philo, C., & Cooper, S. A. (2017a). What effect does transition have on health and well-being in young people with intellectual disabilities? A systematic review. Journal of Applied Research in Intellectual Disabilities, 30(5), 805–823. https://doi.org/10.1111/jar.12286 . (PMID: 10.1111/jar.1228627554952)
      Young-Southward, G., Rydzewska, E., Philo, C., & Cooper, S. A. (2017b). Physical and mental health of young people with and without intellectual disabilities: Cross-sectional analysis of a whole country population. Journal of Intellectual Disability Research, 61(10), 984–993. https://doi.org/10.1111/jir.12422 . (PMID: 10.1111/jir.1242228895262)
      Young-Southward, Genevieve, Cooper, S. A., & Philo, C. (2017c). Health and wellbeing during transition to adulthood for young people with intellectual disabilities: A qualitative study. Research in Developmental Disabilities, 70, 94–103. https://doi.org/10.1016/j.ridd.2017.09.003 . (PMID: 10.1016/j.ridd.2017.09.003)
    • Grant Information:
      RT-2020-0516 Michael Smith Health Research BC
    • Contributed Indexing:
      Keywords: Intellectual/developmental disability; Mental health; Transition; Youth
    • Publication Date:
      Date Created: 20240208 Date Completed: 20240701 Latest Revision: 20240701
    • Publication Date:
      20240702
    • Accession Number:
      10.1007/s10802-024-01174-0
    • Accession Number:
      38329685