Palliative and Supportive Care for Patients with End-Stage Hepatocellular Carcinoma: Perspectives of Egyptian Domestic Caregivers.

Item request has been placed! ×
Item request cannot be made. ×
loading   Processing Request
Read More Add to Saved list
  • Additional Information
    • Source:
      Publisher: Asian Pacific Organization for Cancer Prevention Country of Publication: Thailand NLM ID: 101130625 Publication Model: Electronic Cited Medium: Internet ISSN: 2476-762X (Electronic) Linking ISSN: 15137368 NLM ISO Abbreviation: Asian Pac J Cancer Prev Subsets: MEDLINE
    • Publication Information:
      Original Publication: Bangkok : Asian Pacific Organization for Cancer Prevention,
    • Subject Terms:
      Carcinoma, Hepatocellular*/therapy ; Liver Neoplasms*/therapy; Humans ; Female ; Adult ; Male ; Caregivers ; Egypt ; Quality of Life ; Palliative Care
    • Abstract:
      Objectives: Palliative care is a holistic, patient-centered approach to improving the quality of life for those with terminal diseases and their families. The main objective of the current study was to evaluate the Egyptian domestic caregivers' knowledge, attitudes, and competencies related to palliative and supportive care.
      Methods: Three hundred and thirty-five family caregivers in total were recruited. A descriptive research design was used. Four tools were used to collect data; structured interview questionnaire to collect demographic questions, palliative care knowledge questionnaire, Palliative Attitude Scale, and Competence Scale. The study was conducted in oncology outpatient and pain clinics located at the Damietta Cancer Institute in Damietta Governorate, Egypt.
      Results: Nearly two-thirds of the informal family caregivers are aged between 30-40 years old; 54% are female, and 83% are married. Also, sixty-seven point eight of the informal family caregivers were working (part-time). Furthermore, 65 % of them had insufficient knowledge, 68 % had a positive attitude, and 58% of the informal family caregivers had non-competency skills regarding palliative and supportive care.
      Conclusion: Approximately two-thirds of informal care providers had insufficient total knowledge scores, more than half possessed a positive attitude, and more than half reported non-competency skills regarding palliative care of hepatocellular patients.
      Recommendation: It is highly advisable to launch extensive health education programs and campaigns aimed at all of the unpaid informal family careers of patients with serious terminal illnesses, including hepatocellular carcinoma, at various governments with greater sample sizes.
    • References:
      J Cancer Epidemiol. 2014;2014:437971. (PMID: 25328522)
      Liver Int. 2021 Jan;41(1):6-15. (PMID: 32998172)
      J Egypt Natl Canc Inst. 2016 Dec;28(4):257-262. (PMID: 27378258)
      Int J Cancer. 2015 Mar 1;136(5):E359-86. (PMID: 25220842)
      BMJ Support Palliat Care. 2021 Oct 7;:. (PMID: 34620693)
      BMC Palliat Care. 2020 Nov 26;19(1):180. (PMID: 33243212)
      N Engl J Med. 2010 Aug 19;363(8):733-42. (PMID: 20818875)
      Kidney Int. 2019 Apr;95(4S):S1-S33. (PMID: 30904051)
      BMC Palliat Care. 2021 Mar 17;20(1):44. (PMID: 33731087)
      J Natl Compr Canc Netw. 2014 Dec;12(12):1763-71; quiz 1771. (PMID: 25505216)
      J Egypt Natl Canc Inst. 2020 Jan 16;32(1):5. (PMID: 32372179)
      EClinicalMedicine. 2020 May 20;22:100357. (PMID: 32462117)
      J Pain Symptom Manage. 2013 Jun;45(6):1094-106. (PMID: 23017628)
      BMC Palliat Care. 2020 Jul 11;19(1):105. (PMID: 32652984)
      J Pain Symptom Manage. 2020 Feb;59(2):293-301.e8. (PMID: 31539604)
      Am J Hosp Palliat Care. 2020 Jun;37(6):481-487. (PMID: 31690088)
      N Engl J Med. 2019 Apr 11;380(15):1450-1462. (PMID: 30970190)
      Indian J Palliat Care. 2022 Apr-Jun;28(2):180-191. (PMID: 35673683)
      Palliat Support Care. 2022 Feb;20(1):55-61. (PMID: 34763743)
      South Asian J Cancer. 2018 Jan-Mar;7(1):24-26. (PMID: 29600229)
      J Gastroenterol Hepatol. 2021 Mar;36(3):618-628. (PMID: 32627853)
      Am J Hosp Palliat Care. 2018 Mar;35(3):431-439. (PMID: 28631493)
      Am J Hosp Palliat Care. 2021 Jun;38(6):601-609. (PMID: 33535787)
      Nat Rev Dis Primers. 2021 Jan 21;7(1):6. (PMID: 33479224)
      World J Clin Cases. 2018 Nov 6;6(13):589-599. (PMID: 30430114)
      PLoS One. 2019 Aug 15;14(8):e0219074. (PMID: 31415570)
      Cancer Med. 2018 May;7(5):1784-1793. (PMID: 29577624)
      Expert Rev Gastroenterol Hepatol. 2021 Nov;15(11):1295-1307. (PMID: 34624198)
    • Contributed Indexing:
      Keywords: Family caregiver; Hepatocellular carcinoma; Supportive care; palliative care
    • Publication Date:
      Date Created: 20231229 Date Completed: 20240103 Latest Revision: 20240305
    • Publication Date:
      20240305
    • Accession Number:
      PMC10909099
    • Accession Number:
      10.31557/APJCP.2023.24.12.4179
    • Accession Number:
      38156853