Colorectal cancer survivors' experiences and views of shared and telehealth models of survivorship care: A qualitative study.

Publisher: Wiley Country of Publication: England NLM ID: 9214524 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1099-1611 (Electronic) Linking ISSN: 10579249 NLM ISO Abbreviation: Psychooncology Subsets: MEDLINE

Original Publication: Chichester, W. Sussex, England : Wiley, c1992-

Cancer Survivors* ; Colorectal Neoplasms*/therapy ; Telemedicine*; Female ; Humans ; Male ; Survivors ; Survivorship ; Qualitative Research ; Randomized Controlled Trials as Topic

Objectives: The number of colorectal cancer (CRC) survivors is increasing and current models of survivorship care are unsustainable. There is a drive to implement alternative models of care including shared care between general practitioners (GPs) and hospital-based providers. The primary objective of this study was to explore perspectives on facilitators and barriers to shared care. The secondary objective was to explore experiences of telehealth-delivered care.
Method: Qualitative data were collected via semi-structured interviews with participants in the Shared Care for Colorectal Cancer Survivors (SCORE) randomised controlled trial. Interviews explored patient experiences of usual and shared survivorship care during the SCORE trial. In response to the COVID pandemic, participant experiences of telehealth appointments were also explored. Interviews were recorded and transcribed for thematic analysis.
Results: Twenty survivors of CRC were interviewed with an even number in the shared and usual care arms; 14 (70%) were male. Facilitators to shared care included: good relationships with GPs; convenience of GPs; good communication between providers; desire to reduce public health system pressures. Barriers included: poor communication between clinicians; inaccessibility of GPs; beliefs about GP capacity; and a preference for follow-up care with the hospital after positive treatment experiences. Participants also commonly expressed a preference for telehealth-based follow-up when there was no need for a clinical examination.
Conclusions: This is one of few studies that have explored patient experiences with shared and telehealth-based survivorship care. Findings can guide the implementation of these models, particularly around care coordination, communication, preparation, and personalised pathways of care.
(© 2023 The Authors. Psycho-Oncology published by John Wiley & Sons Ltd.)

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Victorian Cancer Agency; National Health and Medical Research Council; Cancer Australia

Keywords: cancer; colorectal; implementation science; oncology; psycho-oncology; qualitative research; survivorship; telemedicine

Date Created: 20231210 Date Completed: 20240207 Latest Revision: 20240207

20240207

10.1002/pon.6265

38072641