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Participatory development of CURA, a clinical ethics support instrument for palliative care.
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- Additional Information
- Source:
Publisher: BioMed Central Country of Publication: England NLM ID: 101088680 Publication Model: Electronic Cited Medium: Internet ISSN: 1472-6939 (Electronic) Linking ISSN: 14726939 NLM ISO Abbreviation: BMC Med Ethics Subsets: MEDLINE
- Publication Information:
Original Publication: London : BioMed Central, [2000-
- Subject Terms:
- Abstract:
Background: Existing clinical ethics support (CES) instruments are considered useful. However, users report obstacles in using them in daily practice. Including end users and other stakeholders in developing CES instruments might help to overcome these limitations. This study describes the development process of a new ethics support instrument called CURA, a low-threshold four-step instrument focused on nurses and nurse assistants working in palliative care.
Method: We used a participatory development design. We worked together with stakeholders in a Community of Practice throughout the study. Potential end users (nurses and nurse assistants in palliative care) used CURA in several pilots and provided us with feedback which we used to improve CURA.
Results: We distinguished three phases in the development process. Phase one, Identifying Needs, focused on identifying stakeholder and end user needs and preferences, learning from existing CES instruments, their development and evaluation, and identify gaps. Phase two, Development, focused on designing, developing, refining and tailoring the instrument on the basis of iterative co-creation. Phase three, Dissemination, focused on implementation and dissemination. The instrument, CURA, is a four-step low-threshold instrument that fosters ethical reflection.
Conclusions: Participatory development is a valuable approach for developing clinical ethics support instruments. Collaborating with end users and other stakeholders in our development study has helped to meet the needs and preferences of end users, to come up with strategies to refine the instrument in order to enhance its feasibility, and to overcome reported limitations of existing clinical ethics instruments.
(© 2022. The Author(s).)
- References:
J Prof Nurs. 2018 Nov - Dec;34(6):507-513. (PMID: 30527701)
BMC Med Ethics. 2018 Dec 22;19(1):97. (PMID: 30577790)
HEC Forum. 2023 Jun;35(2):139-159. (PMID: 34888756)
Nurs Ethics. 2022 Nov-Dec;29(7-8):1562-1577. (PMID: 35622018)
Am J Nurs. 2016 Jul;116(7):40-9. (PMID: 27294668)
J Pain Symptom Manage. 2020 May;59(5):e6-e13. (PMID: 31778784)
BMC Med Ethics. 2015 Nov 16;16:78. (PMID: 26573410)
BMJ Open. 2015 Dec 09;5(12):e009415. (PMID: 26656023)
BMC Health Serv Res. 2018 Jul 25;18(1):585. (PMID: 30045726)
BMJ Support Palliat Care. 2019 Sep;9(3):245-254. (PMID: 30636204)
Harv Bus Rev. 2010 Oct;88(10):100-9, 150. (PMID: 20929195)
Appl Nurs Res. 2018 Oct;43:1-9. (PMID: 30220354)
Int J Health Policy Manag. 2016 Jan 28;5(4):221-3. (PMID: 27239867)
J Med Ethics. 2013 Nov;39(11):681-5. (PMID: 23328983)
J Telemed Telecare. 2017 Oct;23(9):780-785. (PMID: 28027678)
Palliat Med. 2021 Feb;35(2):315-334. (PMID: 33302783)
JMIR Res Protoc. 2017 May 17;6(5):e75. (PMID: 28526674)
Educ Action Res. 2017;25(4):489-505. (PMID: 30135617)
Bioethics. 2019 Nov;33(9):1012-1021. (PMID: 31339182)
Sci Eng Ethics. 2013 Sep;19(3):945-62. (PMID: 22806218)
- Contributed Indexing:
Keywords: Clinical ethics support; Moral competences; Moral resilience; New instruments; Participatory development
- Publication Date:
Date Created: 20220324 Date Completed: 20220428 Latest Revision: 20240825
- Publication Date:
20240826
- Accession Number:
PMC8942152
- Accession Number:
10.1186/s12910-022-00772-1
- Accession Number:
35321698
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