Twenty years of pediatric diabetes surveillance: what do we know and why it matters.

Publisher: New York Academy of Sciences Country of Publication: United States NLM ID: 7506858 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1749-6632 (Electronic) Linking ISSN: 00778923 NLM ISO Abbreviation: Ann N Y Acad Sci Subsets: MEDLINE

Publication: 2006- : New York, NY : Malden, MA : New York Academy of Sciences ; Blackwell
Original Publication: New York, The Academy.

Diabetes Complications/*epidemiology ; Diabetes Mellitus, Type 1/*epidemiology ; Diabetes Mellitus, Type 2/*epidemiology; Adolescent ; Child ; Child, Preschool ; Diabetes Complications/mortality ; Diabetes Mellitus, Type 1/pathology ; Diabetes Mellitus, Type 2/pathology ; Epidemiological Monitoring ; Humans ; Incidence ; Infant ; Observational Studies as Topic ; Prevalence ; Registries ; United States/epidemiology

SEARCH for Diabetes in Youth (SEARCH) was initiated in 2000 as a multicenter study to address major gaps in the understanding of childhood diabetes in the United States. An active registry of youth diagnosed with diabetes at age <20 years since 2002 assessed prevalence, annual incidence, and trends by age, race/ethnicity, sex, and diabetes type. An observational cohort nested within the population-based registry was established to assess the natural history and risk factors for acute and chronic diabetes-related complications, as well as the quality of care and quality of life of children and adolescents with diabetes from diagnosis into young adulthood. SEARCH findings have contributed to a better understanding of the complex and heterogeneous nature of youth-onset diabetes. Continued surveillance of the burden and risk of type 1 and type 2 diabetes is important to track and monitor incidence and prevalence within the population. SEARCH reported evidence of early diabetes complications highlighting that continuing the long-term follow-up of youth with diabetes is necessary to further our understanding of its natural history and to develop the most appropriate approaches to primary, secondary, and tertiary prevention of diabetes and its complications. This review summarizes two decades of research and suggests avenues for further work.
(© 2021 New York Academy of Sciences.)

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Keywords: epidemiology; health disparities; surveillance; type 1 diabetes; type 2 diabetes; youth

Date Created: 20210205 Date Completed: 20211116 Latest Revision: 20240813

20240813

PMC8282684

10.1111/nyas.14573

33543783