Health promotion and preventive health care service guidelines for the care of people with spina bifida.

Publisher: IOS Press Country of Publication: Netherlands NLM ID: 101490944 Publication Model: Print Cited Medium: Internet ISSN: 1875-8894 (Electronic) Linking ISSN: 18745393 NLM ISO Abbreviation: J Pediatr Rehabil Med Subsets: MEDLINE

Original Publication: Amsterdam : IOS Press

Practice Guidelines as Topic*; Health Promotion/*methods ; Preventive Health Services/*methods ; Spinal Dysraphism/*rehabilitation; Adolescent ; Adult ; Child ; Child, Preschool ; Female ; Humans ; Infant ; Infant, Newborn ; Male ; Young Adult

Individuals with Spina Bifida (SB) have unique lifelong medical and social needs. Thus, when considering how to promote health and offer preventive care, providers must adapt general healthcare screening and counseling recommendations to their patients' physical and cognitive impairments along with discerning how to monitor secondary or chronic conditions common to the population. This article provides an update on the health promotion and preventive health care guidelines developed as part of the Spina Bifida Association's fourth edition of the Guidelines for the Care of People with Spina Bifida. The guidelines highlight accommodations needed to promote general preventive health, common secondary/chronic conditions such as obesity, metabolic syndrome, hypertension, musculoskeletal pain, and considerations for preventing acute care utilization for the SB population throughout the lifespan. Further research is needed to understand the effectiveness of preventive care interventions in promoting positive health outcomes and mitigating potentially preventable acute care utilization.

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U01 DD001077 United States DD NCBDD CDC HHS; U01DD001077 United States ACL ACL HHS

Keywords: Spina bifida; disabilities; health promotion; myelomeningocele; preventative health

Date Created: 20201208 Date Completed: 20211008 Latest Revision: 20240806

20240806

PMC7838968

10.3233/PRM-200718

33285642