Rise Above: Experiences of Spirituality Among Family Caregivers Caring for Their Dying Family Member in a Hospice Setting in Pakistan.

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  • Author(s): Lalani N;Lalani N; Duggleby W; Olson J
  • Source:
    Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association [J Hosp Palliat Nurs] 2019 Oct; Vol. 21 (5), pp. 422-429.
  • Publication Type:
    Journal Article; Research Support, Non-U.S. Gov't
  • Language:
    English
  • Additional Information
    • Source:
      Publisher: Nursecom, Inc Country of Publication: United States NLM ID: 100887419 Publication Model: Print Cited Medium: Internet ISSN: 1539-0705 (Electronic) Linking ISSN: 15222179 NLM ISO Abbreviation: J Hosp Palliat Nurs Subsets: MEDLINE
    • Publication Information:
      Original Publication: Philadelphia, PA : Nursecom, Inc., c1999-
    • Subject Terms:
      Spirituality*; Caregivers/*psychology ; Hospices/*standards; Adaptation, Psychological ; Adult ; Caregivers/statistics & numerical data ; Female ; Hospices/methods ; Hospices/statistics & numerical data ; Humans ; Male ; Middle Aged ; Pakistan ; Qualitative Research
    • Abstract:
      Family caregivers experience multiple transitions, resolutions, loss, and grief where their search for meaning becomes evident. Spirituality is an important dimension of palliative care, yet little attention has been given to this important aspect of spirituality especially among the family caregivers in a hospice setting. The study aimed to bring the hidden voices of family caregivers, their own spiritual experiences caring for their dying patients in a hospice setting, to guide and direct the care practices of health care professionals. An interpretive descriptive approach guided the study using a purposive sample of 18 family caregivers from a hospice in Karachi, Pakistan. Major themes were family love, attachment, and belongingness; honoring family values and dignity; acts of compassion and selfless service; and seeking God's kindness and grace. Spirituality enabled family caregivers to uncover meaningful engagement and provided strength and peace while serving a dying family member in challenging caregiving situations such as adversity and limited resources. They highly valued the love, respect, and honor of the family; showed compassion; believed in God's blessings; and experienced spiritual growth and self-transcendence. Spirituality was found to be a major resource of coping among family caregivers. Health care professionals need to integrate spirituality while developing family-centered interventions in hospice care.
    • Publication Date:
      Date Created: 20190719 Date Completed: 20200824 Latest Revision: 20200824
    • Publication Date:
      20240628
    • Accession Number:
      10.1097/NJH.0000000000000584
    • Accession Number:
      31318734