Factors influencing time to case registration for youth with type 1 and type 2 diabetes: SEARCH for Diabetes in Youth Study.

Publisher: Elsevier Country of Publication: United States NLM ID: 9100013 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1873-2585 (Electronic) Linking ISSN: 10472797 NLM ISO Abbreviation: Ann Epidemiol Subsets: MEDLINE

Original Publication: New York, NY : Elsevier, c1990-

Registries*; Diabetes Mellitus, Type 1/*epidemiology ; Diabetes Mellitus, Type 2/*epidemiology ; Ethnicity/*statistics & numerical data ; Racial Groups/*statistics & numerical data; Adolescent ; Age Factors ; Child ; Child, Preschool ; Diabetes Mellitus, Type 1/diagnosis ; Diabetes Mellitus, Type 2/diagnosis ; Female ; Humans ; Infant ; Male ; Needs Assessment ; Prevalence ; Retrospective Studies ; Risk Assessment ; Sex Factors ; Statistics, Nonparametric ; United States/epidemiology ; Young Adult

Purpose: The development of a sustainable pediatric diabetes surveillance system for the United States requires a better understanding of issues related to case ascertainment.
Methods: Using the SEARCH for Diabetes in Youth registry, we examined whether time from diabetes diagnosis to case registration differed by diabetes type, patient demographics, and the type of provider reporting the case to the study. Plots for time from diagnosis to registration were developed, and differences by key variables were examined using the log-rank test.
Results: Compared with time to registration for type 1 cases, it took 2.6 (95% confidence interval [CI], 2.5-2.6) times longer to register 50% of type 2 diabetes cases, and 2.3 (95% CI, 2.0-2.5) times longer to register 90% of type 2 cases. For type 1 diabetes cases, a longer time to registration was associated with older age, minority race/ethnicity, and cases, where the referring provider was not an endocrinologist. For type 2 diabetes cases, older age, non-Hispanic white race/ethnicity, and cases reported by providers other than an endocrinologist took longer to identify and register.
Conclusions: These findings highlight the need for continued childhood diabetes surveillance to identify future trends and influences on changes in prevalence and incidence.
(Copyright © 2016 Elsevier Inc. All rights reserved.)

J Clin Endocrinol Metab. 2011 Jan;96(1):159-67. (PMID: 20962021)
Diabetologia. 1998 Aug;41(8):904-10. (PMID: 9726592)
J Pediatr. 1996 May;128(5 Pt 1):608-15. (PMID: 8627431)
Am J Epidemiol. 2013 Oct 1;178(7):1106-13. (PMID: 23887044)
Diabetes Care. 2011 Jul;34(7):1628-33. (PMID: 21636800)
J Pediatr Endocrinol Metab. 2007 Oct;20(10):1093-107. (PMID: 18051928)
Int J Circumpolar Health. 2012 May 07;71(0):1-7. (PMID: 22584517)
Control Clin Trials. 2004 Oct;25(5):458-71. (PMID: 15465616)
JAMA. 2014 May 7;311(17):1778-86. (PMID: 24794371)
Diabetes Care. 1998 Aug;21(8):1278-81. (PMID: 9702433)
Diabet Med. 2013 Feb;30(2):170-8. (PMID: 23075321)
JAMA. 2007 Jun 27;297(24):2765-6. (PMID: 17595280)

U01 DP000247 United States DP NCCDPHP CDC HHS; U18 DP002710 United States DP NCCDPHP CDC HHS; U01 DP000245 United States DP NCCDPHP CDC HHS; M01 RR000069 United States RR NCRR NIH HHS; U18 DP002714 United States DP NCCDPHP CDC HHS; U01 DP000248 United States DP NCCDPHP CDC HHS; M01 RR000037 United States RR NCRR NIH HHS; U01 DP000244 United States DP NCCDPHP CDC HHS; CC999999 United States ImCDC Intramural CDC HHS; UL1 RR029882 United States RR NCRR NIH HHS; U18 DP002709 United States DP NCCDPHP CDC HHS; P30 DK056350 United States DK NIDDK NIH HHS; UL1 TR000077 United States TR NCATS NIH HHS; U01 DP000250 United States DP NCCDPHP CDC HHS; U18 DP002708 United States DP NCCDPHP CDC HHS; P30 DK057516 United States DK NIDDK NIH HHS; HIR 10-001 United States HX HSRD VA; U01 DP000246 United States DP NCCDPHP CDC HHS; U01 DP000254 United States DP NCCDPHP CDC HHS

Keywords: Case ascertainment; Diabetes in youth; Surveillance; Type 1 diabetes; Type 2 diabetes

Date Created: 20160925 Date Completed: 20180117 Latest Revision: 20240615

20240615

PMC5322941

10.1016/j.annepidem.2016.07.014

27664849