Primary Palliative Care Model: The Cardiac Nurse's Implications for Caring for the Child with Hypoplastic Left Heart Syndrome.

Item request has been placed! ×
Item request cannot be made. ×
loading   Processing Request
Read Online Read More Add to Saved list
  • Additional Information
    • Subject Terms:
      PEDIATRIC nurses; PEDIATRIC nursing; NURSES; PALLIATIVE treatment; CARDIOVASCULAR nurses; OCCUPATIONAL roles; PRIMARY health care; PATIENT advocacy; HYPOPLASTIC left heart syndrome; CAREGIVERS; PEDIATRIC cardiology; CARDIOVASCULAR disease nursing; PALLIATIVE care nursing; INTEGRATED health care delivery
    • Abstract:
      Background: Hypoplastic left heart syndrome (HLHS) was one of the highest mortality congenital heart defects; however, children with HLHS are living longer with medical and technological advancements. This reality resulted in an increased need for primary palliative care. Nurses assume a direct role in providing care to this specific population. Methods: The literature review from PubMed and CINHAL included key terms primary palliative care, pediatric palliative care, pediatric cardiology, HLHS AND nursing care, the role of the pediatric nurse, and pediatric palliative care education. Articles focusing on children with HLHS, pediatric palliative care, the nursing role, pediatric palliative care education, and parental perspectives were included. Articles with a focus on adults with congenital heart disease were excluded. Results: Thirty-three sources were selected for the final review. Palliative care has grown, specializing in children's care. Cardiology providers could improve upon integrating primary palliative care into practice compared to other pediatric specialties. This integration would enhance the quality of life for children with HLHS. Nurses who work with this population are essential in providing this type of care, and require proper education and training. Discussion: After reviewing the articles, it was evident that the nurse's role is crucial in providing primary palliative care to children with HLHS to maintain their quality of life. However, a gap in the literature exists, warranting further research on this topic. Findings in this article suggest that conducting and implementing research and relevant education might provide a better understanding of primary palliative care and its impact on children with HLHS. [ABSTRACT FROM AUTHOR]
    • Abstract:
      Copyright of Pediatric Nursing is the property of Jannetti Publications, Inc. and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)