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Folly Beach Library
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Edgar Allan Poe/Sullivan's Island Library
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Wando Mount Pleasant Library
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Village Library
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Phone: (843) 884-9741
St. Paul's/Hollywood Library
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Otranto Road Library
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Mt. Pleasant Library
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McClellanville Library
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Keith Summey North Charleston Library
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John's Island Library
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Hurd/St. Andrews Library
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Miss Jane's Building (Edisto Library Temporary Location)
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Bees Ferry West Ashley Library
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Exploring Parent Experiences With Early Palliative Care Practices in the NICU.
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- Author(s): Quinn, Megan; Gephart, Sheila; Crist, Janice
- Source:
Advances in Neonatal Care (Lippincott Williams & Wilkins); Apr2024, Vol. 24 Issue 2, p98-109, 12p- Subject Terms:
CONTINUING education units; AUDITING; PATIENTS' families; PALLIATIVE treatment; PSYCHOLOGICAL distress; QUALITATIVE research; INTERPROFESSIONAL relations; MEDICAL personnel; NEONATAL intensive care units; INTERVIEWING; CONTENT analysis; MOTHERS; DECISION making; NEONATAL intensive care; PSYCHOLOGICAL adaptation; PARENTING; JUDGMENT sampling; HOSPITAL care of newborn infants; THEMATIC analysis; FAMILY-centered care; RESEARCH methodology; FATHERS; COMMUNICATION; PSYCHOLOGY of parents; SOCIAL support; FAMILY support - Source:
- Additional Information
- Abstract: Background: The anxiety and uncertain outcome of an admission of a seriously ill infant to the neonatal intensive care unit (NICU) can cause great stress for parents and contribute to poor mental health outcomes. Early implementation of family-centered palliative care (PC) may provide support for NICU parents. Key concepts of early PC in the NICU include shared decision-making, care planning, and support for coping with distress. Purpose: The purpose of this study was to explore parent experiences during their child's NICU admission with the early PC practices of shared decision-making, care planning, and coping with distress. Methods: Qualitative descriptive methodology was used. Strategies of reflexive journaling, peer debriefing, and data audits were used to enhance trustworthiness. Parents (N = 16) were interviewed, and data were analyzed by conventional content analysis. Targeted recruitment of fathers occurred to ensure they comprised 25% of sample. Results: Parents' descriptions of decision-making were contextualized in gathering information to make a decision, the emotional impact of the decision, and influences on their decision-making. In experiences with care planning, parents described learning to advocate, having a spectator versus participant role, and experiencing care planning as communication. Key themes expressed regarding parental coping were exposure to trauma, survival mode, and a changing support network. Implications for Practice and Research: These findings highlight key areas for practice improvement: providing more support and collaboration in decision-making, true engagement of parents in care planning, and encouraging peer support and interaction in the NICU and in online communities. [ABSTRACT FROM AUTHOR]
- Abstract: Copyright of Advances in Neonatal Care (Lippincott Williams & Wilkins) is the property of Lippincott Williams & Wilkins and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
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