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Edgar Allan Poe/Sullivan's Island Library
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West Ashley Library
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Wando Mount Pleasant Library
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9 a.m. - 1 p.m.
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9 a.m. - 8 p.m.
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Self-management for sickle cell disease among patients and parents: A qualitative study.
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- Author(s): Druye, Andrews Adjei; Nelson, Katherine; Robinson, Brian
- Source:
Chronic Illness; Jun2024, Vol. 20 Issue 2, p233-245, 13p- Subject Terms:
SICKLE cell anemia treatment; HEALTH self-care; CLINICAL medicine; QUALITATIVE research; ACADEMIC medical centers; RESEARCH funding; INTERVIEWING; CONTENT analysis; KEY performance indicators (Management); JUDGMENT sampling; DESCRIPTIVE statistics; HYDRATION; RESEARCH methodology; CONTENT mining; PSYCHOLOGY of parents; COMPARATIVE studies; PREVENTIVE health services - Source:
- Additional Information
- Abstract: Objective: This study aimed to explore self-management practices among patients and parents of children with sickle cell disease (SCD). Methods: The qualitative descriptive design was employed. The study involved 19 participants comprising adult SCD patients ≥16 years, and nine parents of SCD children ≤ 15 years. Purposive sampling was conducted to select participants from a teaching hospital and SCD association. Data was collected using one-on-one interviews, transcribed verbatim, and analysed using qualitative content analysis. Results: Self-management was reported through four categories including preventive health, self-monitoring, self-diagnosis, and self-treatment. Hydration, nutrition, activity limitation, avoidance of cold temperatures, and supportive medications were the most common preventive health actions. Regarding self-monitoring and self-diagnosis, the parents emphasized objective indicators such as changes in urine and eye colour compared to the adults who utilize subjective indicators such as feeling unwell and easy fatigue. Pharmacological and non-pharmacological measures were reported by both groups for treating painful episodes, fever, leg ulcers, priapism, and unspecified symptoms. Discussion: The participants in this study practice several self-management actions with some differences in application between adults and children. Tailored self-management services may be helpful for adults and children when developing services for SCD patients. [ABSTRACT FROM AUTHOR]
- Abstract: Copyright of Chronic Illness is the property of Sage Publications, Ltd. and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
- Abstract:
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