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"We'll deal with it as it comes": A qualitative analysis of romantic partners' dyadic coping in cystic fibrosis.
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- Author(s): Lau, Nancy; Ramos, Kathleen J.; Aitken, Moira L.; Goss, Christopher H.; Barton, Krysta S.; Kross, Erin K.; Engelberg, Ruth A.
- Source:
Journal of Social & Personal Relationships; Apr2024, Vol. 41 Issue 4, p689-705, 17p- Subject Terms:
RESEARCH funding; QUALITATIVE research; SATISFACTION; PALLIATIVE treatment; ATTITUDES toward illness; SPOUSES; INTERVIEWING; CONTENT analysis; FAMILIES; PSYCHOLOGICAL adaptation; SEVERITY of illness index; DESCRIPTIVE statistics; FUNCTIONAL status; THEMATIC analysis; CISGENDER people; RESEARCH methodology; QUALITY of life; COMMUNICATION; MATHEMATICAL models; PSYCHOLOGICAL stress; THEORY; CYSTIC fibrosis; PSYCHOSOCIAL functioning; WELL-being - Source:
- Additional Information
- Abstract: Background: Although cystic fibrosis (CF) is a progressive, life-limiting, genetic disease, recent advances have extended survival, allowing persons with CF the time and physical and mental health to form romantic relationships. Previous studies have shown the importance of dyadic coping to positive psychosocial functioning and relationship satisfaction for people with serious chronic illness and their romantic partners, but little work has been done with persons with CF and their partners. The present study examines dyadic coping processes in persons with CF and their romantic partners. Methods: 16 adults with moderate to severe CF (M
age = 42.3, 43.8% identified as cisgender male, 56.2% identified as cisgender female) and their romantic partners (Mage = 43.8, 56.3% identified as cisgender male, 43.7% identified as cisgender female) participated in individual semi-structured interviews focused on topics related to quality of life, communication, and palliative care. We conducted a directed content analysis utilizing Berg and Upchurch's (2007) developmental-contextual theoretical model to examine dyadic coping processes in persons with CF and their romantic partners. Results: Consistent with the developmental-contextual model of dyadic coping, couples described adapting to health and functional declines that occurred over time. Dyads were aligned in their appraisals of illness representation, illness ownership, and perspectives of illness as a shared stressor; they used shared coping mechanisms that included supportive and collaborative actions rather than uninvolved or controlling strategies. Conclusions: We recommend family-based approaches to medical decision-making and goals of care conversations with persons with CF and their partners, aligning those approaches with supportive and collaborative coping configurations. This may improve psychosocial outcomes for patients and their partners. [ABSTRACT FROM AUTHOR] - Abstract: Copyright of Journal of Social & Personal Relationships is the property of Sage Publications, Ltd. and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
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