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Folly Beach Library
9 a.m. - 5:30 p.m.
Phone: (843) 588-2001
Edgar Allan Poe/Sullivan's Island Library
Closed for renovations
Phone: (843) 883-3914
West Ashley Library
9 a.m. – 7 p.m.
Phone: (843) 766-6635
Wando Mount Pleasant Library
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Phone: (843) 805-6888
Village Library
9 a.m. - 6 p.m.
Phone: (843) 884-9741
St. Paul's/Hollywood Library
9 a.m. – 8 p.m.
Phone: (843) 889-3300
Otranto Road Library
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Phone: (843) 572-4094
Mt. Pleasant Library
9 a.m. – 8 p.m.
Phone: (843) 849-6161
McClellanville Library
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Keith Summey North Charleston Library
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John's Island Library
9 a.m. – 8 p.m.
Phone: (843) 559-1945
Hurd/St. Andrews Library
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Miss Jane's Building (Edisto Library Temporary Location)
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Baxter-Patrick James Island
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Phone: (843) 805-6930
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Palliative care needs and preferences of older adults with advanced or serious chronic illnesses and their families in rural communities of Indiana, USA.
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- Author(s): Lalani, Nasreen; Hamash, Kawther; Wang, Yitong
- Source:
Journal of Rural Health; Mar2024, Vol. 40 Issue 2, p368-375, 8p- Subject Terms:
FAMILIES & psychology; ELDER care; HEALTH services accessibility; PALLIATIVE treatment; QUALITATIVE research; CONVERSATION; RESEARCH funding; CRITICALLY ill; PATIENTS; INTERVIEWING; CATASTROPHIC illness; SYMPTOM burden; CHRONIC diseases; RURAL health services; THEMATIC analysis; BURDEN of care; TELEMEDICINE; RESEARCH methodology; TRUST; TERMINAL care; MEDICAL needs assessment; HEALTH promotion; DISCRIMINATION (Sociology); TERMINALLY ill; CAREGIVER attitudes; OLD age - Source:
- Additional Information
- Subject Terms:
- Abstract: Purpose: To explore the palliative care needs and preferences of older adults with advanced or serious chronic illnesses and their families. Also, to propose strategies to promote supportive palliative care in the rural communities of Indiana, USA. Method: We conducted qualitative interviews to gather rural caregivers' experiences of palliative care. Recruitment was done in collaboration with community partners using social media, flyers, emails, invitations, and word‐of‐mouth. A purposive sample of family caregivers was obtained. All the interviews were conducted online. The average interview was 30‐45 minutes. Data were analyzed using a thematic analysis approach. Findings: Our findings showed 6 major themes that indicated several palliative care needs and preferences of older patients and their families in rural communities that include: (1) difficulties in pain and symptom burden; (2) perceived discrimination and lack of trust; (3) longer distances to care facilities; (4) difficult conversations; (5) caregiving burden; and (6) use of telehealth in a rural palliative care context. Conclusion: Rural family caregivers experience several social inequities and disparities causing a lack of access to and low utilization of palliative care. All these disparities cause several challenges for patients and their families trying to manage serious illnesses and die in place with peace and comfort. Inadequate access and lack of resources cause pain and distress for both patients and their families. Provider education and trainings, initiating early palliative care models, integrating behavioral health in palliative care, and using culturally congruent care delivery approaches in support of community partners can improve palliative care services in rural communities. [ABSTRACT FROM AUTHOR]
- Abstract: Copyright of Journal of Rural Health is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
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