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West Ashley Library
9 a.m. - 6 p.m.
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Wando Mount Pleasant Library
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9 a.m. - 6 p.m.
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"I'm not mad, bad, and dangerous ... simply wired differently": Exploring factors contributing to good quality of life with autistic women.
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- Author(s): Paricos, Arianna; Sturrock, Alexandra; Twomey, Katherine; Leadbitter, Kathy
- Source:
Research in Autism Spectrum Disorders; Apr2024, Vol. 112, pN.PAG-N.PAG, 1p - Source:
- Additional Information
- Abstract: There is increasing recognition of under-representation of autistic women in the academic literature and the impact of this on understanding, diagnosis, and support. Previous research has suggested that autistic women have poorer quality of life (QoL) than the general population. However, these findings have been established through use of QoL measures based on non-autistic norms and priorities. This qualitative study used bottom-up, reflexive thematic analysis methods to explore how ten autistic women defined good QoL, and the factors identified as key to achieving this, using individual semi-structured interviews. Findings indicate four main themes that represent routes to good QoL: positive sense of self; feeling supported; autonomy; inclusion. Participants noted that being autistic itself was not a determinant of reduced QoL. Instead, participants' QoL was underpinned by the extent to which participants understood themselves, others understood and accommodated their needs, and the person-environment fit. The findings of this study align with a positive approach to neurological difference and have implications for diagnosis, post-diagnostic support and applications of current QoL measures for autistic women. • Autistic women described good quality of life across four themes. Accurate diagnosis was critical. • Positive sense of self, entailed self-awareness & alignment of personal strengths to pursuits. • Acceptance within the autistic community was integral to Feeling supported. • Autonomy meant the capacity to create one's ideal sensory environment & pursue special interests. • Inclusion involved self-advocacy plus being understood by friends, family & professionals. [ABSTRACT FROM AUTHOR]
- Abstract: Copyright of Research in Autism Spectrum Disorders is the property of Elsevier B.V. and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
- Abstract:
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