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Distress and psychosocial support seeking: A comparison of rural and metropolitan oncology patient experiences.
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- Author(s): Martin, Mahala; Rice, Kylie; Murray, Clara V.; Rock, Adam J.; Usher, Kim J.
- Source:
Australian Journal of Rural Health. Feb2024, Vol. 32 Issue 1, p29-41. 13p. - Source:
- Additional Information
- Subject Terms: CANCER patient psychology; SOCIAL support; HEALTH services accessibility; PATIENT decision making; RURAL conditions; CROSS-sectional method; ATTITUDE (Psychology); TIME; TRAVEL; POPULATION geography; HELP-seeking behavior; QUANTITATIVE research; MEDICAL care costs; PATIENTS' attitudes; COMPARATIVE studies; PSYCHOLOGICAL tests; LIFE; ATTITUDES toward illness; RESEARCH funding; DESCRIPTIVE statistics; SYMPTOMS; METROPOLITAN areas; CONTENT analysis; PSYCHOLOGICAL adaptation; STATISTICAL sampling; DATA analysis software; STAY-at-home orders; PSYCHOLOGICAL distress; COVID-19 pandemic
- Subject Terms:
- Abstract: Introduction: Prevalence of distress in cancer patients is established at approximately 50%, yet uptake of psychosocial support is minimal. Objective: This study aimed to understand why clinically distressed oncology patients choose not to access psychosocial support, including whether this differs by geographic location. It also aimed to determine the proportion of rural and metropolitan patients experiencing clinical levels of distress, and of these, the proportion who do not wish to access support. Design: The study used a cross‐sectional design. Two hundred and ninety‐eight Australian cancer patients completed an online survey, including the Distress Thermometer and open‐ended questions about reasons for declining support. Descriptive statistics and content analysis were used to analyse the data. Findings: More than half (56%) of participants reported experiencing clinically significant levels of distress. Of these, almost half (47%) declined psychosocial support. Content analysis of reasons for declining psychosocial support resulted in six main concepts: I don't need support; I'm using personal resources to cope; negative perceptions and attitudes; life doesn't stop for cancer; I'm focussed on fighting cancer; and systemic barriers. Rural cancer patients most often indicated using personal resources to cope, while metropolitan participants most commonly indicated not needing support. A range of subconcepts were also identified. Perceiving distress as manageable or transient was almost exclusively reported by metropolitan participants, while stigma was almost exclusively reported by rural participants. Discussion: The findings provided greater depth of insight into reasons cancer patients decline psychosocial support and identified several qualitative differences in the reasons provided by metropolitan and rural patients. Recommendations are provided for clinicians, in particular for clinicians who work with rural cancer patients and their supporters. Conclusion: These findings can inform equitable resourcing of psychosocial support in rural areas and the adaptation of psychosocial interventions to be more flexible and responsive to individual needs. This may help increase patient uptake of support, particularly in rural areas. [ABSTRACT FROM AUTHOR]
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