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Evaluating ethnically diverse patients' perspectives of considering participation in renal clinical research.
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- Author(s): Agbonmwandolor, Joy Oghogho1 (AUTHOR) ; Brand, Sarah2 (AUTHOR)
- Source:
Nurse Researcher. 12/7/2023, Vol. 31 Issue 4, p38-44. 7p.- Subject Terms:
*HUMAN research subjects; *KIDNEYS; *MINORITIES; *PATIENT participation; *CLINICAL trials; *CONFIDENCE intervals; *HEALTH services accessibility; *PATIENT selection; *BLACK people; *ONE-way analysis of variance; *CLINICAL medicine research; *CULTURAL pluralism; *PATIENTS' attitudes; *SURVEYS; *QUESTIONNAIRES; *DESCRIPTIVE statistics; *DATA analysis software - Source:
- Additional Information
- Abstract: Why you should read this article: • To avoid underrepresentation of minority ethnic groups in clinical trials • To ensure patients' perspectives of participation are considered in clinical trials • To understand how a face-to-face approach and the research team's expertise can influence a patient's decision Background: Clinical trial cohorts do not often reflect target patient populations because minority ethnic groups are underrepresented in clinical trials. Aim: To increase minority ethnic groups' opportunities to participate in clinical trials, by evaluating ethnically diverse patients' perspectives of considering participation in renal clinical research. Discussion: The authors gave patients participating in at least one research study the opportunity to take part in a structured survey. The survey explored preferences, barriers and opportunities that patients considered when deciding whether to take part in a clinical trial. The authors included participants from multiple ethnic groups so they could compare data for different ethnicities. Conclusion: Participation was a positive experience for most patients, mostly because of the research team's flexibility and professionalism. Researchers' gender and ethnicity did not affect the participants' decision to participate. Cultural preferences were not obvious from the data as 80% of the participants were white. Implications for practice: Patients preferred a face-to-face approach and the expertise of the research team affected participation more than any other characteristics did. However, respondents were already research-engaged and conducting a similar study with those who have declined to participate in research may show different results. [ABSTRACT FROM AUTHOR]
- Abstract: Copyright of Nurse Researcher is the property of RCNi and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
- Abstract:
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