A LIFE WITH PURPOSE.

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  • Author(s): Mullen, P.H.
  • Source:
    Swimming World. May2005, Vol. 46 Issue 5, p29-30. 2p. 2 Color Photographs.
  • Additional Information
    • Subject Terms:
      EHLERS-Danlos syndrome; COLLAGEN diseases; BURPEE, Nancy; LIFE expectancy; SKIN abnormalities; DISEASES
    • Abstract:
      This article reports that Nancy Burpee, a swimmer has Ehlers-Danlos Syndrome (EDS), a rare and painful genetic disease that statistically should kill her sometime in the near future. No, she's not complaining about her EDS, a rare and painful genetic disease that statistically should kill her sometime in the near future. Burpee was born with EDS, which according to the EDS National Foundation, is a disease that prevents the body from producing normal collagen. Life expectancy for this form of EDS is early 40s. Burpee hit 40 several months ago.