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Folly Beach Library
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Phone: (843) 588-2001
Edgar Allan Poe/Sullivan's Island Library
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Wando Mount Pleasant Library
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Village Library
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Phone: (843) 884-9741
St. Paul's/Hollywood Library
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Otranto Road Library
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Mt. Pleasant Library
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McClellanville Library
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Keith Summey North Charleston Library
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John's Island Library
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Hurd/St. Andrews Library
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Miss Jane's Building (Edisto Library Temporary Location)
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Phone: (843) 805-6930
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Phone: (843) 805-6892
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Translation and preliminary validation of the Brazilian family resources scale in a sample of parents of children with congenital Zika virus syndrome.
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- Author(s): Barker Ladd, Sarah; Williams, Natalie A.; Villachan-Lyra, Pompéia; Chaves, Emmanuelle; Hollist, Cody; Trefiglio Mendes Gomes, Renata; Barbosa, Leopoldo Nelson F.
- Source:
Journal of Pediatric Rehabilitation Medicine; 2023, Vol. 16 Issue 2, p337-350, 14p- Subject Terms:
CAREGIVER attitudes; RESEARCH evaluation; PARENTS of children with disabilities; RESEARCH methodology evaluation; RESEARCH methodology; HEALTH outcome assessment; FAMILY-centered care; PSYCHOSOCIAL factors; MENTAL depression; FACTOR analysis; RESEARCH funding; ZIKA virus infections; CHILD development deviations; PSYCHOLOGICAL stress; CHILDREN - Source:
- Additional Information
- Subject Terms:
- Abstract: PURPOSE: Family-centered rehabilitative care optimizes outcomes for children with significant developmental disabilities. Family-centered services involve assessing family resources that promote positive developmental outcomes for children. Little is known regarding family resources in the context of caring for a child with developmental disabilities in Brazil due to an absence of validated measures. This study describes the translation and cultural adaptation of the Family Resource Scale and explored the measurement quality of the resulting measure (the Brazilian-Family Resource Scale, or B-FRS). METHODS: A rigorous serial translation process that emphasized linguistic accuracy as well as cultural adaptation was utilized. The resulting 27-item B-FRS was theoretically related and reflected the contextual intent of the original measure. RESULTS: A four-factor scoring approach yielded acceptable internal consistency estimates for the subscales and total scale score. Overall, low levels of family resources were reported by caregivers of children with Congenital Zika Syndrome. Low family resources were associated with parental depressive and stress-related symptoms. CONCLUSION: Confirmatory factor analysis of the B-FRS in a larger sample is recommended. Practitioners in Brazil should broadly consider family needs and resources to provide family-centered care that is effective for the child and engages the family in a way that highlights their strengths and promotes positive developmental trajectories. [ABSTRACT FROM AUTHOR]
- Abstract: Copyright of Journal of Pediatric Rehabilitation Medicine is the property of IOS Press and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
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