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John L. Dart Library
9 a.m. – 7 p.m.
Phone: (843) 722-7550
West Ashley Library
9 a.m. – 7 p.m.
Phone: (843) 766-6635
Folly Beach Library
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Phone: (843) 588-2001
Edgar Allan Poe/Sullivan's Island Library
Closed for renovations
Phone: (843) 883-3914
Wando Mount Pleasant Library
9 a.m. – 8 p.m.
Phone: (843) 805-6888
Village Library
9 a.m. – 6 p.m.
Phone: (843) 884-9741
St. Paul's/Hollywood Library
9 a.m. – 8 p.m.
Phone: (843) 889-3300
Otranto Road Library
9 a.m. – 8 p.m.
Phone: (843) 572-4094
Mt. Pleasant Library
9 a.m. – 8 p.m.
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McClellanville Library
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Keith Summey North Charleston Library
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John's Island Library
9 a.m. – 8 p.m.
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Hurd/St. Andrews Library
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Miss Jane's Building (Edisto Library Temporary Location)
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Dorchester Road Library
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Main Library
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Phone: (843) 805-6930
Bees Ferry West Ashley Library
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Phone: (843) 805-6892
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Phone: (843) 805-6909
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What does receiving autism diagnosis in adulthood look like? Stakeholders' experiences and inputs.
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- Author(s): Ghanouni, Parisa; Seaker, Liam
- Source:
International Journal of Mental Health Systems; 6/8/2023, Vol. 17 Issue 1, p1-10, 10p- Subject Terms:
DIAGNOSIS of autism; PARENT attitudes; DELAYED diagnosis; MEDICINE information services; HEALTH services accessibility; RESEARCH methodology; PARENTS of children with disabilities; STAKEHOLDER analysis; ATTITUDE (Psychology); INTERVIEWING; MEDICAL care costs; GROUP identity; GUILT (Psychology); PATIENTS' attitudes; ATTITUDES toward illness; EXPERIENCE; QUALITATIVE research; COMPARATIVE studies; HEALTH literacy; HEALTH information services; AUTISM; SOUND recordings; RESEARCH funding; PSYCHOSOCIAL factors; QUALITY assurance; DESCRIPTIVE statistics; THEMATIC analysis; EMOTIONS; DATA analysis; DATA analysis software; ADULTS - Source:
- Additional Information
- Subject Terms:
- Abstract: Introduction: The age of diagnosis is crucial for optimal health outcomes; however, some individuals with Autism Spectrum Disorder (ASD) may not be diagnosed until adulthood. Limited information is available about the lived experience of receiving a diagnosis during adulthood. Thus, we aimed to investigate stakeholders' experiences about the ASD diagnosis during adulthood. Method: We interviewed 18 individuals including 13 adults with ASD who had received a late diagnosis during adulthood and 5 parents of individuals with ASD from various Canadian provinces. Results: Using a thematic analysis, three main themes emerged: (a) noticing differences and similarities, (b) hindering elements to diagnosis, and (c) emotional response to diagnostic odyssey. Conclusion: This study adds to the literature about experiences of receiving ASD diagnosis in adulthood. Given the impact of diagnosis on individuals, it is important to minimize the barriers to ensure individuals who require ASD-related supports can access them in a timely and effective manner. This study highlights the importance of receiving an ASD diagnosis and facilitates positive health outcomes. The findings from the current study can be used to guide adult diagnostic processes and practices to help make ASD diagnosis more accessible. [ABSTRACT FROM AUTHOR]
- Abstract: Copyright of International Journal of Mental Health Systems is the property of BioMed Central and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
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