Perspectives of Autistic Emerging Adults, Parents, and Practitioners on the Transition to Adulthood.

PARENT attitudes; SOCIALIZATION; TRANSITION to adulthood; FOCUS groups; SOCIAL support; ATTITUDES of medical personnel; INTERVIEWING; UNCERTAINTY; MEDICAL personnel; MENTAL health; PATIENTS' attitudes; LIFE; PARENTING; PATIENTS' families; AUTISM; INTERPERSONAL relations; HEALTH; INFORMATION resources; THEMATIC analysis; ANXIETY; INFORMATION-seeking behavior; SOCIAL skills; PARENT-child relationships

Autism spectrum disorder (ASD) is a pervasive neurodevelopmental disorder that is characterized by impact on individuals' socialization, communication, and behavior. The transition to adulthood can be challenging for many autistic emerging adults and their families considering the core clinical characteristics of ASD, limited social support, and lack of resources. Taken together these challenges make the transition process difficult and may yield undesirable adult outcomes. The current study examines how the process of transitioning to adulthood impacts families. We conducted six focus group interviews with autistic emerging adults (n = 6), parents of autistic transitional age youth (TAY) (n = 7), and transition related practitioners (n = 11). Thematic analysis was used to identify four themes. Autistic emerging adults described Redefining Meaningful Interpersonal Relationships as a salient domain of the transition experience. Parents discussed Being Overwhelmed by Demands and Uncertainty that Leads to Anxiety. Practitioners discussed Parents' Lack of Readiness–that some parents may have difficulty receiving input from practitioners regarding the transition process. Our findings indicate that emerging adults' social relationships are greatly impacted during the transition to adulthood. Parents need more support as their autistic child transitions to adulthood to best assist their child and for their own mental health. Practitioners acknowledge the importance of parents' evolving roles during the transition process. Highlight: The period of transitioning to adulthood was not only impactful for autistic emerging adults but also for parents. Whereas autistic emerging adults focused on normative developmental tasks, it was a time of anxiety for parents. Practitioners had concerns that some parents were not prepared for their child's transition to adulthood. The transition process can be influenced by support and education for caregiving families. [ABSTRACT FROM AUTHOR]

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