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"It's not all nice and fun": Narrating contested illness on YouTube and Instagram.
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- Author(s): Groenevelt, Irene
- Source:
Health: An Interdisciplinary Journal for the Social Study of Health, Illness & Medicine; Sep2022, Vol. 26 Issue 5, p589-604, 16p- Subject Terms:
- Source:
- Additional Information
- Subject Terms:
- Abstract: This empirical study draws on insights from narrative theory to tease out how women with a contested illness narrate their experiences on social media. Based on 13 months of online observations between 2017 and 2019, I analyse how a sample of eight highly active Dutch female social media users share their illness on YouTube and Instagram. In addition, I interviewed five of them. Through their online performances, the women in this study illustrate their investment in self-care practices, whilst simultaneously laying bare the limits of these practices in ensuring permanent well-being. Central to transmitting their experiences is the performance of balanced positivity; meaning that illness is dealt with in a predominantly 'positive' way, as well as through the occasional display of (moments of) hardship. I identify three main aspects of this performance of balanced positivity, namely: (1) appearances, (2) mindset, and (3) presence. The practice of balanced positivity is congruent with the concept of legitimacy narratives, because it allows women with a contested illness to show their efforts to cope with their condition as well as the myriad challenges that remain despite these efforts. [ABSTRACT FROM AUTHOR]
- Abstract: Copyright of Health: An Interdisciplinary Journal for the Social Study of Health, Illness & Medicine is the property of Sage Publications Inc. and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
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