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Burden and Treatment Satisfaction among Caregivers of Adolescents with Borderline Personality Disorder.
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- Author(s): Jørgensen, Mie Sedoc; Storebø, Ole Jakob; Poulsen, Stig; Simonsen, Erik
- Source:
Family Process. Sep2021, Vol. 60 Issue 3, p772-787. 16p. 1 Diagram, 3 Charts. - Source:
- Additional Information
- Subject Terms:
- Abstract: Despite the fact that family involvement is encouraged in early interventions for borderline personality disorder (BPD), there is a limited knowledge on the experience of caring for adolescents with BPD. This is an exploratory retrospective study nested within a randomized controlled trial that compared mentalization‐based treatment (MBT) in groups to treatment as usual for adolescents with BPD. Caregivers received six MBT‐Parents sessions or standard care over one year. Three months after end of treatment (EOT), 75 caregivers (35 in MBT, 40 in TAU) filled out the Burden Assessment Scale, and 71 (34 in MBT, 37 in TAU) the Family Satisfaction Survey. The adolescents filled out the Borderline Personality Features Scale for Children at baseline and after twelve months at EOT. We tested whether caregiver demographics, adolescents' severity of BPD, treatment and adolescents' dropout from treatment predicted levels of caregiver burden and satisfaction with treatment. The caregivers reported high levels of burden on the BAS (M = 40.3, SD = 12.2). Our study suggests that higher BPD severity at EOT among the adolescents predicted caregiver burden (p =.03), whereas higher baseline BPD severity predicted satisfaction with treatment (p =.04) and that biological mothers could be more burdened than other types of caregivers but also might be more satisfied with treatment. Treatment and adolescents' dropout from treatment were not related to caregiver burden or satisfaction with treatment. To help inform future research and to devise appropriate interventions for caregivers and adolescents with BPD, it is important to identify possible predictors of caregiver burden. The results of this initial exploratory study indicate that caregivers (and particularly biological mothers) of adolescents with more severe levels of BPD could be particularly vulnerable toward feelings of burden and therefore are in need of support. [ABSTRACT FROM AUTHOR]
- Abstract: Resumen: A pesar del hecho de que se recomienda la participación familiar en las primeras intervenciones para el trastorno límite de la personalidad (TLP), se sabe muy poco sobre la experiencia de cuidar a adolescentes con TLP. El presente es un estudio retrospectivo exploratorio enmarcado en un ensayo controlado aleatorizado que compara el tratamiento basado en la mentalización (TBM) en grupos con el tratamiento habitual (TH) para adolescentes con TLP. Los cuidadores recibieron seis sesiones de TBM para padres o la atención normal durante un año. Tres meses después del final del tratamiento, 75 cuidadores (35 en TBM, 40 en TH) completaron la Escala de Evaluación del Agobio (Burden Assessment Scale), y 71 (34 en TBM, 37 en TH) la Encuesta de Satisfacción Familiar (Family Satisfaction Survey). Los adolescentes completaron la Escala de Características de la Personalidad Límite para Niños (Borderline Personality Features Scale for Children) en el momento basal y después de doce meses al final del tratamiento. Evaluamos si las características demográficas de los cuidadores, la intensidad del TLP de los adolescentes, el tratamiento y la deserción del tratamiento por parte de los adolescentes predijeron niveles de agobio en los cuidadores y de satisfacción con el tratamiento. Los cuidadores informaron niveles altos de agobio en la Escala de Evaluación del Agobio (M = 40.3, DT= 12.2). Nuestro estudio indica que una mayor intensidad del TLP al final del tratamiento entre los adolescentes predijo el agobio del cuidador (p =.03), mientras que una mayor intensidad del TLP en el momento basal predijo la satisfacción con el tratamiento (p =.04), y que las madres biológicas podrían estar más agobiadas que otros tipos de cuidadores, pero también podrían estar más satisfechas con el tratamiento. El tratamiento y la deserción del tratamiento por parte de los adolescentes no estuvieron relacionados con el agobio del cuidador ni con la satisfacción con el tratamiento. Con el fin de contribuir a ampliar futuras investigaciones y de idear intervenciones adecuadas para cuidadores y adolescentes con TLP, es importante reconocer posibles predictores del agobio del cuidador. Los resultados de este estudio exploratorio inicial indican que los cuidadores (y particularmente las madres biológicas) de los adolescentes con niveles más intensos de TLP podrían ser particularmente vulnerables hacia sentimientos de agobio y, por lo tanto, necesitan apoyo. [ABSTRACT FROM AUTHOR]
- Abstract: 摘要: 尽管在边缘性人格障碍(BPD)的早期干预中鼓励家庭参与,但对照顾BPD青少年的经验却知之甚少。本研究是一项探索性的回顾性研究,在随机对照试验中比较了在小组中基于心智治疗(MBT)的BPD青少年与常规治疗的BPD青少年。照料者在一年多的时间里接受了6次MBT‐家长会或标准护理。治疗结束(EOT) 3个月后,75名照顾者(MBT 35名,TAU 40名)填写了负担评估量表,71名照顾者(MBT 34名,TAU 37名)填写了家庭满意度调查。这些青少年在基线和12个月后填写了儿童的边缘性人格特征量表。我们测试了护理人员的人口统计学信息、青少年BPD的严重程度、治疗情况和青少年退出治疗等因素是否可以预测照料者的负担水平和对治疗的满意度。照料者报告BAS负担高(M = 40.3, SD = 12.2)。我们的研究表明,青少年在EOT时较高的BPD严重程度预测了照顾者的负担(p =.03),而较高的基线BPD严重程度预测了对治疗的满意度(p =.04),亲生母亲可能比其他类型的照顾者负担更重,但也可能对治疗更满意。治疗本身和青少年退出治疗两者与照顾者负担或对治疗的满意度无关。为了为未来的研究提供信息,并为患有BPD的照顾者和青少年设计适当的干预措施,确定照顾者负担的可能预测因子是很重要的。这项初步探索性研究的结果表明,BPD程度较严重的青少年的照顾者(尤其是亲生母亲)可能特别容易受到负担感的伤害,因此需要支持。 [ABSTRACT FROM AUTHOR]
- Abstract: Copyright of Family Process is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
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