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Wando Mount Pleasant Library
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Women with cerebral palsy: A qualitative study about their experiences with sexual and reproductive health education and services.
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- Author(s): Gray, Susan Hayden; Byrne, Rachel; Christensen, Sinead; Williams, David; Wylie, Molly; Fowler, Eileen; Gaebler-Spira, Deborah; Marciniak, Christina; Glader, Laurie; Green, Michael
- Source:
Journal of Pediatric Rehabilitation Medicine; 2021, Vol. 14 Issue 2, p285-293, 9p- Subject Terms:
HEALTH education; SELF advocacy; FOCUS groups; ACADEMIC medical centers; HEALTH services accessibility; RESEARCH methodology; INTERVIEWING; GYNECOLOGIC examination; EXPERIENCE; SEX education; QUALITATIVE research; PSYCHOLOGY of women; CEREBRAL palsy; MEDICAL appointments; THEMATIC analysis; REPRODUCTIVE health - Source:
- Additional Information
- Abstract: PURPOSE: To explore the recalled experiences of women with CP regarding sexual health education and services they received. METHODS: Semi-structured interviews and focus groups were conducted at four academic tertiary hospitals with 33 adult women with CP. Templates were used to ask about four key content domains: appointment planning (including planning for a gynecologic exam), accessibility of services, experiences with providers, and recommendations for improvement. Sessions were transcribed verbatim and analyzed to generate a coding dictionary. Blinded coding was carried out for each transcript, with duplicate coding used to confirm identified themes. Iterative analysis was used to identify and consolidate coding and key themes. RESULTS: Similar barriers were discussed at the four sites, including lack of accessible exam tables, hospital staff unfamiliar with physical disabilities, and assumptions that women with CP are not sexually active. Many described the sexual education they received as brief, omitted, or mistimed. Self-advocacy was crucial, and recommended strategies ranged from pre-gynecologic exam medication to visit checklists. CONCLUSION: Reproductive health education for young women with CP is frequently inadequate. Medical professionals lack relevant knowledge and awareness; medical facilities lack necessary infrastructure. Recommendations for improvements are made. [ABSTRACT FROM AUTHOR]
- Abstract: Copyright of Journal of Pediatric Rehabilitation Medicine is the property of IOS Press and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
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