It Takes a Community; Network of caregivers shuttles children and families through the complex world of critical and life-ending illness.

Cynthia Guzman was diagnosed with sulfite oxidase deficiency, a rare metabolic disorder, when she was only 6 days old. Doctors predicted she would die within a few months. "We cried a lot," says her father, Jose. "They said they weren't going to be able to do anything." Seven years later, Cynthia is living in North Salinas and, according to her doctors, is the world's longest-living sulfite oxidase deficiency patient...