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The Impact of Living with Parkinson’s Disease: Balancing within a Web of Needs and Demands.
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- Author(s): Sjödahl Hammarlund, Catharina; Westergren, Albert; Åström, Ingrid; Edberg, Anna-Karin; Hagell, Peter
- Source:
Parkinson's Disease (20420080); 7/29/2018, p1-8, 8p- Subject Terms:
PARKINSON'S disease diagnosis; PARKINSON'S disease; ATTITUDE (Psychology); AUTONOMY (Psychology); CONTENT analysis; DIGNITY; GROUP identity; HEALTH attitudes; INTERVIEWING; RESEARCH methodology; MOTIVATION (Psychology); NEEDS assessment; HEALTH outcome assessment; QUALITY of life; SOCIAL participation; WELL-being; PSYCHOLOGY - Source:
- Additional Information
- Abstract: This study explores the impact of living with Parkinson’s disease (PD). Nineteen persons (11 women) aged 55–84 diagnosed with PD 3–27 years ago participated. Data were collected through semistructured interviews, which were recorded, transcribed verbatim, and analysed by qualitative content analysis. Four categories represented the impact of living with PD: “Changed prerequisites for managing day-to-day demands,” “Loss of identity and dignity,” “Compromised social participation,” and “The use of practical and psychological strategies.” There was a shift from an internal to an external locus of control in managing, control, competence, relatedness, and autonomy. According to self-determination theory, a shift towards extrinsically motivated behaviours may occur when these basic needs are thwarted, leading to compensatory strategies or needs substitutes with negative consequences on health and well-being. We suggest a needs-based approach as an important starting point to better understand the consequences of living with PD and to explore the means for people with PD to acquire an improved quality of life on their own terms. In conclusion, our findings suggest for a shift in focus, from a biomedical to a needs-based approach to understand the impact of living with PD and facilitate more person-centred care and person-centred outcome measurement. [ABSTRACT FROM AUTHOR]
- Abstract: Copyright of Parkinson's Disease (20420080) is the property of Hindawi Limited and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
- Abstract:
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