[From genetic privacy to the right to genetic data protection. Basic protection of genetic data in Spanish law (regarding SSTC290/2000 and 292/2000, of November 30) (II)]].

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  • Author(s): Seoane Rodríguez JA;Seoane Rodríguez JA
  • Source:
    Revista de derecho y genoma humano = Law and the human genome review [Rev Derecho Genoma Hum] 2002 Jul-Dec (17), pp. 135-75.
  • Publication Type:
    English Abstract; Journal Article; Review
  • Language:
    Spanish; Castilian
  • Additional Information
    • Transliterated Title:
      De la intimidad genética al derecho a la protección de datos genéticos. La protección iusfundamental de los datos genéticos en el Derecho español (a propósito de las SSTC 290/2000 y 292/2000, de 30 de Noviembre) (Parte II).
    • Source:
      Publisher: Dykinson, S. L Country of Publication: Spain NLM ID: 101558644 Publication Model: Print Cited Medium: Internet ISSN: 1134-7198 (Print) Linking ISSN: 11347198 NLM ISO Abbreviation: Rev Derecho Genoma Hum Subsets: MEDLINE
    • Publication Information:
      Publication: 2017-: Madrid : Dykinson, S. L.
      Original Publication: Bilbao : Universidad de Deusto, 1994-
    • Subject Terms:
      Genetic Privacy/*legislation & jurisprudence ; Human Rights/*legislation & jurisprudence; Confidentiality/legislation & jurisprudence ; Constitution and Bylaws ; European Union ; Family Health ; Forecasting ; Humans ; Informed Consent/legislation & jurisprudence ; Informed Consent/standards ; Medical Records/legislation & jurisprudence ; Models, Theoretical ; Spain
    • Abstract:
      In the second part the author examines the repercussions of constitutional case law on the legal protection of genetic information. He then considers the special nature of genetic information and addresses the corresponding need for special treatment thereof in law. A specific model is suggested for the legal status of such information. This model is based on the Spanish Constitution and the European Convention on Human Rights and Biomedicine. The article then casts a critical eye over data protection legislation in Spain (in particular Law 15/1999 of 13 December) concentrating on five principles, four of which are substantive and the fifth procedural: 1) consent; 2) purpose; 3) confidentiality; 4) quality; 5) proportionality. Lastly, the article gives examples of areas in which the model might be applied (for instance in employment contracts, insurance, access to information by family members).
    • Number of References:
      111
    • Publication Date:
      Date Created: 20030422 Date Completed: 20030530 Latest Revision: 20161021
    • Publication Date:
      20231215
    • Accession Number:
      12703113