The role of formal support in the lives of children of mothers with intellectual disability.

ATTITUDE (Psychology); CHILDREN of people with mental illness; INTERVIEWING; LIFE; RESEARCH methodology; PEOPLE with intellectual disabilities; QUESTIONNAIRES; STATISTICAL sampling; HOME environment; SOCIAL support; ATTITUDES toward disabilities

Background Mothers with intellectual disability face socioeconomic disadvantage and social isolation, which is associated with poorer child outcomes. Social services feature prominently in the lives of mothers with intellectual disability especially those without informal support; however, the role of formal support in the lives of their children has not been explored. Methods Seven children aged 7-11 years took part in semi-structured interviews to explore their social experiences. Stories about interactions at home, school and with peers were analysed to illuminate influences, including social support, in their lives. Results Formal support can provide an enduring relationship for children from socially restricted homes when it focuses on the child's abilities, interests and needs as distinct from those of their mother. Child-focused support can be from a paid worker or volunteer. Conclusions Family support services need to apply a child focus to improve the well-being of children in vulnerable families. [ABSTRACT FROM AUTHOR]

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