Speech-language therapy services for children with cleft palate: A scoping review on continuity of care.

Item request has been placed! ×
Item request cannot be made. ×
loading   Processing Request
  • Author(s): Bow M;Bow M; McCabe P; McCabe P; Purcell A; Purcell A; Purcell A
  • Source:
    International journal of language & communication disorders [Int J Lang Commun Disord] 2024 Nov-Dec; Vol. 59 (6), pp. 2423-2440. Date of Electronic Publication: 2024 Jul 24.
  • Publication Type:
    Journal Article; Review
  • Language:
    English
  • Additional Information
    • Source:
      Publisher: Wiley Country of Publication: United States NLM ID: 9803709 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1460-6984 (Electronic) Linking ISSN: 13682822 NLM ISO Abbreviation: Int J Lang Commun Disord Subsets: MEDLINE
    • Publication Information:
      Publication: 2011- : Malden, MA : Wiley
      Original Publication: London : Taylor & Francis for the Royal College of Speech & Language Therapists, c1998-
    • Subject Terms:
    • Abstract:
      Background: Children with a cleft palate (with or without a cleft of the lip) often require speech-language therapy (SLT) services to achieve age-appropriate speech. For many children, this involves attending SLT services delivered by both specialised cleft team speech-language therapists (SLTs) and a local, community or school-based SLT. Given that these two different SLTs are typically involved in the child's care, it is important to ensure that effective communication, coordination and collaboration occur between them. This is known as continuity of care. While continuity of care in speech therapy has not generally been evaluated, in medicine it has been shown to improve health outcomes.
      Aims: To identify what is known from the existing literature about processes for continuity of care in cleft speech therapy services.
      Methods & Procedures: A scoping review was conducted using Arksey and O'Malley's methodological framework. Seven databases were searched including MEDLINE via OVID, EMBASE via OVID, CINAHL via EBSCO, PsychINFO, Scopus, Web of Science and SpeechBITE. Covidence was used to screen 733 initial articles and five studies met the inclusion criteria. Thematic analysis was conducted to identify global and subthemes.
      Main Contribution: Five papers were included for analysis. These identified two salient characteristics of cleft speech therapy continuity of care: (1) it is a continuous cycle and (2) it is complex. Although parents are integral team members, cleft and community SLTs must be responsible for initiating communication and collaborating. Furthermore, cleft SLTs have a crucial role in disseminating information and resources, as well as offering guidance and support.
      Conclusions & Implications: Given that only five studies were included, there is a need to gather more information from parents, community SLTs, and cleft SLTs to understand their experiences and perspectives. From what is known, there are breakdowns in the processes needed for continuity of care, including confusion regarding roles and responsibilities, and community SLTs lacking confidence, knowledge and support. Recommendations are provided to facilitate improvements in continuity of care.
      What This Paper Adds: What is already known on the subject Children with CP±L often require SLT from two different clinicians including a specialised cleft SLT and a community or school-based SLT. As such, it is important that effective communication and collaboration occur between them to ensure continuity of care. What this study adds to the existing knowledge This study identified a breakdown in the processes necessary for continuity of care. According to community SLTs, there is a discrepancy between their expectations and current practices. This scoping review has identified two critical characteristics of effective continuity of care: (1) it operates as an ongoing cycle; and (2) it is a complex, multifaceted endeavour. What are the practical and clinical implications of this work? This study highlights the importance of cleft and community SLTs taking the initiative in communication and collaboration, rather than solely relying on parents as intermediaries. By offering practical recommendations, this research aims to improve continuity of care, potentially fostering greater awareness and advancements in service delivery.
      (© 2024 The Author(s). International Journal of Language & Communication Disorders published by John Wiley & Sons Ltd on behalf of Royal College of Speech and Language Therapists.)
    • References:
      Alighieri, C., Bettens, K., Verhaeghe, S. & Van Lierde, K. (2021) From excitement to self‐doubt and insecurity: speech–language pathologists’ perceptions and experiences when treating children with a cleft palate. International Journal of Language & Communication Disorders, 56(4), 739–753. https://doi.org/10.1111/1460‐6984.12624.
      Alighieri, C., Bettens, K., Verhaeghe, S. & Van Lierde, K. (2022) Speech diagnosis and intervention in children with a repaired cleft palate: a qualitative study of Flemish private community speech–language pathologists' practices. International Journal of Speech–Language Pathology, 24(1), 53–66. https://doi.org/10.1080/17549507.2021.1946153.
      Alighieri, C., Peersman, W., Bettens, K., Van Herreweghe, V. & Van Lierde, K. (2020) Parental perceptions and expectations concerning speech therapy‐related cleft care—a qualitative study. Journal of Communication Disorders, 87, 106028. https://doi.org/10.1016/j.jcomdis.2020.106028.
      American Cleft Palate–Craniofacial Association. (2018) Parameters for evaluation and treatment of patients with cleft lip/palate or other craniofacial differences. American Cleft Palate–Craniofacial Association.
      American Cleft Palate–Craniofacial Association. (2022) Standards for approval of cleft palate and craniofacial teams. American Cleft Palate–Craniofacial Association.
      American Speech and Hearing Association. (2005) Evidence based practice in communication disorders: Position statement. Retrieved from http://www.asha.org/policy.
      Arksey, H. & O'Malley, L. (2005) Scoping studies: towards a methodological framework. International Journal of Social Research Methodology, 8(1), 19–32. https://doi.org/10.1080/1364557032000119616.
      Bedwinek, A.P., Kummer, A.W., Rice, G.B. & Grames, L.M. (2010) Current training and continuing education needs of preschool and school‐based speech–language pathologists regarding children with cleft lip/palate. Language, Speech and Hearing Services in Schools, 41(4), 405–415. https://doi.org/10.1044/0161‐1461(2009/09‐0021).
      Braun, V. & Clarke, V. (2022) Conceptual and design thinking for thematic analysis. Qualitative Psychology, 9(1), 3–26. https://doi.org/10.1037/qup0000196.
      Britton, L., Albery, L. & Bowden, M. (2014) A cross‐sectional cohort study of speech in five‐year‐olds with cleft palate±lip to support development of national audit standards: benchmarking speech standards in the United Kingdom. The Cleft–Palate Craniofacial Journal, 51(4), 431–451. https://doi.org/10.1597/13-121.
      Cabana, M. & Jee, S. (2004) Does continuity of care improve patient outcomes? The Journal of Family Practice, 33(12), 974–980.
      Cronin, A., McLeod, S. & Verdon, S. (2020) Holistic communication assessment for young children with cleft palate using the international classification of functioning, disability and health: children and youth. Language, Speech and Hearing Services in Schools, 51(4), 914–938. https://doi.org/10.1044/2020_LSHSS‐19‐00122.
      Dailey, S. & Wilson, K. (2015) Communicating with a cleft palate team: improving coordination of care across treatment settings. Perspectives on Speech Science and Orofacial Disorders, 25(1), 35–38. https://doi.org/10.1044/ssod25.1.35.
      Golding‐Kushner, K. (2001) Therapy techniques for cleft palate speech and related disorders. Clifton Park, NY: Delmar Learning.
      Grames, L. (2004) Implementing treatment recommendations: role of the craniofacial team speech–language pathologist in working with the client's speech–language pathologist. Perspectives on Speech Science and Orofacial Disorders, 14(2), 6–9. https://doi.org/10.1044/ssod14.2.6.
      Grames, L. & Stahl, M. (2017) An innovative collaborative treatment model: the community‐based speech–language pathologist and cleft palate team. Cleft Palate Craniofacial Journal, 54(2), 242–244. https://doi.org/10.1597/16‐119.
      Haggerty, J., Reid, R., Freeman, G., Starfield, B., Adair, C. & McKendry, R. (2003) Continuity of care: a multidisciplinary review. British Medical Journal, 327(7425), 1219–1221.
      Haikerwal, M., Dobb, G. & Ahmed, T. (2006) Safe handover: safe patients—guidance on clinical handover for clinicians and managers. Australian Medical Association Limited.
      Hardin‐Jones, M. & Jones, D. (2005) Speech production of preschoolers with cleft palate. The Cleft Palate–Craniofacial Journal, 42(1), 7–13. https://doi.org/10.1597/03-134.1.
      Karnell, M., Bailey, P., Johnson, L., Dragan, A. & Canady, J. (2005) Facilitating communication among speech pathologists treating children with cleft palate. Cleft–Palate Craniofacial Journal, 42(6), 585–588. https://doi.org/10.1597/04-130r1.1.
      Kuehn, D.P. & Moller, K.T. (2000) Speech and language issues in the cleft palate population: The state of the art. The Cleft–Palate Craniofacial Journal, 37(4), 1–35. https://doi.org/10.1597/1545-1569_2000_037_0348_saliit_2.3.co_2.
      Kummer, A., Clark, S., Redle, E. & Thomsen, L. (2012) Current practice in assessing and reporting speech outcomes of cleft palate and velopharyngeal surgery: a survey of cleft palate/craniofacial professionals. The Cleft Palate–Craniofacial Journal, 49(2), 146–152. https://doi.org/10.1597/10-285.
      Levac, D., Colquhoun, H. & O'Brien, K. (2010) Scoping studies: advancing the methodology. Implementation Science, 5(69), 1–9. https://doi.org/10.1186/1748-5908-5-69.
      McKean, K., Phillips, B. & Thompson, A. (2012) A family‐centred model of care in paediatric speech–language. International Journal of Speech–Language Pathology, 14(3), 235–246. https://doi.org/10.3109/17549507.2011.604792.
      Pereira Gray, D., Sidaway‐Lee, K., White, E., Thorne, A. & Evans, P. (2018) Continuity of care with doctors—a matter of life and death? A systematic review of continuity of care and mortality. British Medical Journal, 8(6), 1–12. https://doi.org/10.1136/bmjopen‐2017‐021161.
      Peterson‐Falzone, S., Trost‐Cardamone, J., Karnell, M. & Hardin‐Jones, M. (2016) The clinician's guide to treating cleft palate speech. St. Louis, MO: Mosby.
      Prathanee, B., Dechongkit, S. & Manochioping, S. (2006) Development of community‐based speech therapy model: for children with cleft lip/palate in northeast Thailand. Journal of the Medical Association of Thailand, 89(4), 500–508.
      Roever, L. (2015) Critical appraisal of a questionnaire study. Evidence Based Medicine and Practice, 1, 1–2.
      Salari, N., Darvishi, N., Heydari, M., Bokaee, S., Darvishi, F. & Mohammadi, M. (2022) Global prevalence of cleft palate, cleft lip and cleft palate and lip: a comprehensive systematic review and meta‐analysis. Journal of Stomatology, Oral and Maxillofacial Surgery, 123(2), 110–120. https://doi.org/10.1016/j.jormas.2021.05.
      Sand, A., Hagberg, E. & Lohmander, A. (2022) On the benefits of speech–language therapy for individuals born with cleft palate: a systematic review and meta‐analysis of individual participant data. Journal of speech, language and hearing research, 65(2), 555–573. https://doi.org/10.1044/2021_JSLHR-21-00367.
      Sell, D., Mildinhall, S., Albery, L., Wills, A.K., Sandy, J.R. & Ness, A.R. (2015) The Cleft Care UK study. Part 4: perceptual speech outcomes. Orthodontics & Craniofacial Research, 18(2), 36–46. https://doi.org/10.1111/ocr.12112.
      Tong, A., Sainsbury, P. & Craig, J. (2007) Consolidated criteria for reporting qualitative research (COREQ): a 32‐item checklist for interviews and focus groups. International Journal for Quality in Health Care, 19(6), 349–357. https://doi.org/10.1093/intqhc/mzm042.
      Vallino, L.D., Lass, N.J., Bunnell, H.T. & Pannbacker, M. (2008) Academic and clinical training in cleft palate for speech–language pathologists. The Cleft Palate–Craniofacial Journal, 45(4), 371–380. https://doi.org/10.1597/07‐119.1.
      Willadsen, E., Lohmander, A., Persson, C., Boers, M., Kisling‐Møller, M., Havstam, C., … Andersen, M. (2019) Scandcleft Project, Trial 1: comparison of speech outcome in relation to timing of hard palate closure in 5‐year olds with UCLP. The Cleft Palate–Craniofacial Journal, 56(10), 1276–1286. https://doi.org/10.1177/1055665619854632.
    • Contributed Indexing:
      Keywords: cleft palate; continuity of care; speech therapy
    • Publication Date:
      Date Created: 20240724 Date Completed: 20241116 Latest Revision: 20241119
    • Publication Date:
      20241119
    • Accession Number:
      10.1111/1460-6984.13091
    • Accession Number:
      39046785