"Give them the door but don't push them through it": Family Attitudes Toward Physician-Led Spiritual Care in Pediatric Palliative Medicine.

Item request has been placed! ×
Item request cannot be made. ×
loading   Processing Request
Read Online Read More Add to Saved list
  • Additional Information
    • Source:
      Publisher: Springer Country of Publication: United States NLM ID: 2985199R Publication Model: Print Cited Medium: Internet ISSN: 1573-6571 (Electronic) Linking ISSN: 00224197 NLM ISO Abbreviation: J Relig Health Subsets: MEDLINE
    • Publication Information:
      Publication: New York, NY : Springer
      Original Publication: New York : Academy of Religion and Mental Health.
    • Subject Terms:
      Health Knowledge, Attitudes, Practice* ; Spirituality*; Caregivers/*psychology ; Family/*psychology ; Palliative Care/*methods ; Physicians/*psychology; Adult ; Attitude ; Child ; Female ; Humans ; Interviews as Topic ; Male ; Middle Aged ; Palliative Care/psychology ; Palliative Medicine ; Qualitative Research
    • Abstract:
      Little is known about pediatric caregivers' perceptions of religious or spiritual (R/S) care provided by physicians. We conducted a qualitative, semistructured interview study to understand perceptions of pediatric caregivers toward physician-led R/S care. Participants were 20 primary caregivers whose children were hospitalized and receiving palliative care services. Interviews were audio recorded, transcribed verbatim, and analyzed using constant comparative methods. Three recurrent themes emerged regarding physician-led R/S care: (1) Most caregivers view providing R/S care as a positive sign of physician empathy, while a minority (3/20) prefer to keep R/S and medical care separate, (2) many caregivers prefer R/S care from a physician with whom they have a close relationship and/or share a faith background, and (3) physicians should open the door, but allow families to lead conversations about R/S care. Caregivers have mixed perceptions on physicians engaging in R/S care; most prefer that families set the direction of R/S care for themselves and their loved ones. Physicians should be trained to evaluate families' spiritual backgrounds and needs in ways that respectfully open the door to these conversations.
    • Contributed Indexing:
      Keywords: Pediatric caregivers; Pediatric palliative care; Spiritual care; Spiritual history; Spiritual screening
    • Publication Date:
      Date Created: 20200214 Date Completed: 20201221 Latest Revision: 20201221
    • Publication Date:
      20240829
    • Accession Number:
      10.1007/s10943-020-00991-z
    • Accession Number:
      32052280